Dear Dania, I am aware that I can be quite an abrasive critic but I have the best of intentions. I would dearly love to rescue you from this bogus...
Agreed. Alis's illustration is very useful. It makes a different point from the one about 'agreeing' to do activity but it is all coming from the...
And so that is where the missing CBT went!
That word had already been in the document I am writing. It was reading through NICE NG206 and the BACME resource that made me think 'agreed' was...
Yes, I fully see the sense of an agreed care plan if it is something yo are being provided with - wheelchairs, suitable environments etc. My...
There are about 4,000 new diagnoses of Parkinson's in the Netherlands each year. Radboud is a big medical centre so might see several thousand...
So maybe the doctors should be banned since all these beliefs must have been caught off doctors? It would be particularly disturbing if...
Seems as up as mine, if not upper!
I have got a bit confused but Dania has messaged me the protocol, which says what I have already read so I guess we were already given the...
It is not clear to me that this patient was in the 'National Inpatient Centre for Psychological Illness' that is part of the Leeds ME/CFS service.
Indeed. But the bits about agreed plans seem to be specifically about what has been agreed that the patient will do in the way of activity.
It seems we don't get a protocol?
But why does the provider need to agree? If I saw a patient and recommended a more powerful drug and they said no thanks I wouldn't need to agree...
That is rather what David Tuller and I concluded. In the USA this sort of phoney 'agreeing' doesn't work because people aren't prepared to be...
But do you think that actually means anything? It sounds to me like the doublespeak we hear all the time. It sounds as if it is all for the...
Yes, although in that regard it is interesting to note that BACME says that you can opt out of the agreement and opt in again at any time -...
But that isn't logic to me. You need to find a diet that suits the patient. If they the do not follow it then it is a pity but it was still worth...
There was a general sense with the NICE Guideline that the de-recommendation of GET and CBT was the crucial step forward but that there was still...
Reading through various documents, including the nice 2021 Guideline and the 2024 BACME resource for severe ME/CFS I continue to trip over the...
For rituximab: in my experience no. We treated 5 seronegative rheumatoid cases in the first cohort of 22 and none responded. We did get responses...
Separate names with a comma.
