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Page 13 of 29
  1. Inara
    Post

    Merryn Crofts - media and inquest

    This is so important. Happy and sad. (Thank you @Lisa108 for the link - I wanted to save it, and I couldn't on Facebook.)
    Post by: Inara, May 18, 2018 in forum: General ME/CFS news
  2. Inara
    Post

    Chronic pain often has no physical cause. Psychotherapy can reduce the suffering.

    Thank you, and @Alvin. This feels so very good right now, you don't know how good and important that was for me right now. It is so cruel that...
    Post by: Inara, May 17, 2018 in forum: Other psychosomatic news and research
  3. Inara
    Post

    Pregabalin

    I think something is the matter with the nerves (well, surprise surprise with ME), at least in this leg. And the ENG was this "last drop". I also...
    Post by: Inara, May 17, 2018 in forum: Drug and supplement treatments
  4. Inara
    Post

    Pregabalin

    Thank you, @Anna! :angel: I have tried CBD oil. What dose do you take? I will try again and "play" with the amount. I didn't take Pregabalin...
    Post by: Inara, May 17, 2018 in forum: Drug and supplement treatments
  5. Inara
    Post

    Mental health awareness week includes neurological conditions?

    I agree with you. But I also think that a friendlier work climate and less harmful stress would be positive for everyone.
    Post by: Inara, May 16, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Inara
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    Nooooo! Those people musn't misuse Feynman! I can imagine all my former physics and maths colleagues making....Woahhhh! :arghh: (Well, we would...
    Post by: Inara, May 16, 2018 in forum: General ME/CFS news
  7. Inara
    Post

    Ideas For Marketing ME More Effectively...

    This is what I found on p. 154: Is it what you meant?
    Post by: Inara, May 16, 2018 in forum: General Advocacy Discussions
  8. Inara
    Post

    Ideas For Marketing ME More Effectively...

    Yes. I can't remember a poster :( And I fear it's too much to look it up. But maybe there's an index. I'll have a look.
    Post by: Inara, May 16, 2018 in forum: General Advocacy Discussions
  9. Inara
    Post

    Pregabalin

    Ah, I forgot I thought that when I heard "against high blood pressure". Especially at night my blood pressure is normally low. Yeah, discussing...
    Post by: Inara, May 16, 2018 in forum: Drug and supplement treatments
  10. Inara
    Post

    Free nasal microbiome test/study at uBiome

    Well, it seems my Kit didn't arrive. I am told now that I have no activated kit. Nice. Good luck @TigerLilea
    Post by: Inara, May 16, 2018 in forum: Nutrition, food sensitivity, microbiome treatments
  11. Inara
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    The question also is: Which of these organizations has members that they represent? So can these organizations trully say they represent people...
    Post by: Inara, May 16, 2018 in forum: News from organisations
  12. Inara
    Post

    Sweden stands up for open access – cancels agreement with Elsevier

    That's maybe the long-time plan of university based data archiving? Or it could be.
    Post by: Inara, May 16, 2018 in forum: Research methodology news and research
  13. Inara
    Post

    Pregabalin

    Thank you @adambeyoncelowe for all the information! I will look at it. It's all very helpful. Also thank you very much @Helen for your hint with...
    Post by: Inara, May 16, 2018 in forum: Drug and supplement treatments
  14. Inara
    Post

    Pregabalin

    Thank you @Helen, I will look into that. Is choline unproblematic with our ME issues? Or with MCAS or muscle problems?
    Post by: Inara, May 16, 2018 in forum: Drug and supplement treatments
  15. Inara
    Post

    Sweden stands up for open access – cancels agreement with Elsevier

    Interesting. Personally, I like the OpenAccess idea. But this means Swedish universities have no access to Elsevier starting with July. Hm...
    Post by: Inara, May 16, 2018 in forum: Research methodology news and research
  16. Inara
    Post

    Pregabalin

    My GP won't prescribe Clonidine because it would be an off-label use :( so I'm trying 25mg of Pregabalin right now. I'll probably won't take it...
    Post by: Inara, May 16, 2018 in forum: Drug and supplement treatments
  17. Inara
    Post

    Free nasal microbiome test/study at uBiome

    Exactly the same here. I wrote them 1 or 2 months ago. They said that these "special offers" who were part of a study will take longer. They...
    Post by: Inara, May 15, 2018 in forum: Nutrition, food sensitivity, microbiome treatments
  18. Inara
    Post

    Gold standard to diagnose POTS / OI / NMH?

    So happy for you @Thinktank!
    Post by: Inara, May 15, 2018 in forum: Cardiovascular and exercise physiology (CPET)
  19. Inara
    Post

    Ideas For Marketing ME More Effectively...

    Wonderful, @Luther Blissett!
    Post by: Inara, May 15, 2018 in forum: General Advocacy Discussions
  20. Inara
    Post

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Or differently said - as two people working in the psychology field once said: We can't release our raw data because people will see we're...
    Post by: Inara, May 15, 2018 in forum: General ME/CFS news
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