If we're militant, we have every reason to be so. Compared to the Aids movement, we are gentle - maybe too gentle. Well, nice. Now it's the good...
What's the gain of this 6-subclass-category? And I didn't understand the symptom selection criteria for building these classes. Does someone?
For those (like me) who don't know what intracranial compliance is: https://radiopaedia.org/articles/intracranial-compliance
I think this is something we and others - especially doctors - need to realky understand: Marking by me. If I remember correctly there was (and...
When reading this it always sounds so promising. But are we really that far? What is a bit frustrating is the funding issue - Klimas' research...
This is just a fantastic project, @Mike Harley. Deep thanks to you for what you're doing for all people with ME. This is very moving.
Was this your impression, that this article stated gluten sensitivity as a cause?
I would be interested if there is a connection between mast cells and ME, or better, if and which role mast cells play in ME. In the end, mast...
I'd like to be a research nurse :angel:
This is shocking and telling.
It would also fit my n=1 observation in a family member who definitely has chronic herpes infections, including Varizella Zoster, where...
Well, I would even agree - BUT. There are obviously so many people who profit from avoiding certain food because they have trouble when eating it....
Interesting article. Thanks @Hip for your comment. The hypothesis - a herpes virus (Varizella Zoster) in the root ganglia - would fit the autopsy...
I find this unsatisfactory. As others have said, there is no PEM; also to me, it sounds very "PACE like" (i.e. treatment/management of a...
This sounds a bit like ME/CFS is a wastebucket diagnosis - something some doctors told me, and I disagreed. But here it is. And there are clinical...
I am gluten, soy, meat and most of the time dairy free. And yes - it's hard. But I have so much less problems it's worth it. And there are nice...
I once tried a subcutaneous injection (as e.g. Myhill suggests), and for me it was too painful. (It was really terrible.) For weeks I had a bump....
I am not at Twitter and don't understand it :( but thank you
Will you link here? This is terrible news, for all of us I feel.
This reminds me of guidelines about how to tell patients that they have a psychosomatic/psychological disorder: Tell them you take them seriously,...
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