For @Little Bluestem (and anyone else who couldn't view the poem using the twitter link) here's a youtube version that might work. [MEDIA] Video...
I got some email today from the The Trans-NIH ME/CFS Working Group. (I guess I signed up for their mailing list but had forgotten all about it)...
Bumping this thread ... not sure if I'll watch but some might be interested. Thanks to @MErmaid for including the information in the previous post.
[note to moderators - should this be a new thread? it seems off topic but then I notice that some threads tend to wander a bit, so it may be...
Wow, I hope that it is obvious that this forum is not meant for handing out specific treatment advice to patients! :nailbiting: I'm kind of...
Thanks for the post, @Sly Saint . I've never read that book but I do remember reading the article by Toni Bernhard. It's somewhat of a tangent...
For those who aren't on the email list, the Solve ME/CFS Initiative group has updated their website. Here's the announcement from their mailing...
I've had ME/CFS since 1990 (I meet most of the diagnostic criteria that I've read). I've had muscle twitches ( fasciculations ) since the very...
Hi @It's M.E. Linda I don't know whether this is helpful but here's my experience. I have had two tilt table tests, one in 1995 and the other in...
The Unrest film team sent out a rather long email today. At the bottom of the mail there are links to three actions to take. I thought the action...
I'm not sure this is related, but since we're talking about patents and drug pricing, did anyone see this NY Times article?...
Posted today (Jan 24 2018) by the ME Association. I thought this forum was a good one for discussion but if this thread should be posted...
Not for me. I have a really hard time defining PEM with words. A lot of the detailed PEM descriptions post on this thread are very hard for me to...
Possibly, but then why does that sentence start with although? The word "although" makes it seem (to me) like the reporter is trying to show how...
This sentence is where I got lost. :confused: It seems like non sequitur. Criticism of the medical community not taking this illness seriously...
[Note to moderators: I think this belongs in general news - please move if this is the wrong forum] New article by David M. Perry (twitter handle...
Thanks. I'm certainly not planning on getting any of these tests! I thought they were meant as markers still being researched, not yet...
Hi @Jonathan Edwards - Does any of the more recent research by Dr. Klimas look useful? I can't understand any of it but here's a screen shot...
For my PBS station (OPB in Portland, Oregon) the first showing of Unrest will be Monday, Jan 8, at 11 PM. And then the rerun will be Wednesday,...
Interesting thought, and that last comment made me laugh out loud. Thanks for that!
Separate names with a comma.
