I think it's because most people without ME, and even some patients with ME, think one of the main problems is that ME patients are either not...
Probably not directly related, but I thought it was interesting to see this tweet about measuring blood flow to the brain in astronauts yesterday:...
Update: Anyone can join in this advocacy action. It is not just for UK residents. I asked ME Action UK via twitter and got this response [MEDIA]...
What I found most interesting in this study (assuming I've understood this) is that the reduction in cerebral blood flow (CBF) was correlated with...
I was able to download the PDF from the science direct web page. The download link is at the top of the screen. It's a pre-print copy but the...
Thanks @Michiel Tack :heart: Just retweeted your thread.
Do we have any forum members who live in Florida? This action looks worthwhile since there's already a letter that's going to be sent to the...
Here's a tweet from MEAction UK announcing this action (probably also posted on Facebook but I don't use that): [MEDIA]...
#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They...
Assuming that a bar stool is the same thing as a kitchen stool then my solution is very similar to what Trish described. I even do the same thing...
So sorry you have this orthostatic hyPERtension, @Marky I think that it must be even harder to treat than the delayed hyPOtension that I get...
By the way, I just noticed the little circled "R" next to Invisible Disabilities (not the whole phrase Invisible Disabilities Association). I now...
FYI, here's the Invisible Disabilities Association web page listing all the 2019 awards:...
The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. ME/CFS Advocacy week returns from April 19 –...
@Emily Taylor - Is there any additional information on this plan that the Dept. of HHS is required to submit? When did the 90 days start? What...
I think they must have removed that photo? Maybe they got complaints? Here's a screen shot that I just took of the CME & Education page on...
Thank you @Naomi10 for your blog post :heart: This month, Jan. 2020, marks 30 years of illness for me, too. However, I was not nearly as young...
MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of...
I love this art project about ME using book titles! #MEAction tweeted about this artist recently, which is how I discovered it, but here's a link...
I'm similar in that, for the most part, my symptoms come from physical overexertion. Not too many symptoms (but not zero) come from cognitive...
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