Study is behind a paywall but I think this blog post is about either this study or a similar one....
The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome Marvin S. Medow, PhD, Kenneth Guber,...
Article about dysautonomia (including discussion of POTS) in USA Today:...
Good idea! MEAction has created a playlist on YouTube for these videos:...
No problem! I am often confused by copyright issues. I think this warning just means don't copy the entire text of the article, or large sections...
I've been pretty foggy lately but I can't see why there would be copyright issues with posting a link to the article. It just eliminates a step in...
An excerpt from today's ME Action email about the #NotEnough4ME campaign: On Nov. 4th, NINDS Institute director, Dr. Walter Koroshetz, responded...
If I'm reading your posts correctly (not really able to watch your videos) you're interested in more protesting in the streets. So my suggestion...
Thanks for the new thread! I look forward to reading more about it as the time comes nearer. I once met with an aide to my own local...
I'm trying to do my small part on twitter :) Pinned tweet: https://twitter.com/ahimsa_pdx/status/1188175417473032192 [MEDIA] Short thread...
More than 3000 signatures so far. :)
A basic standing test may be okay for diagnosing POTS. But what about other forms of orthostatic intolerance? From what I've read the tilt table...
Dr. Klimas has also done research using tests that were able to distinguish patients with ME/CFS from patients with Gulf War Illness and also from...
Thank you @Michiel Tack :heart:
Thanks for the info, @Lynn :) I did contact OMF. I sent email to info@omf.ngo. No response yet. I will follow-up soon. I think Science For ME...
Yeah, it's clearly something they set up for the video. It's almost identical to what was used in the last video that they posted. [ATTACH] [ATTACH]
I promised to post photos of the bracelet - here they are for anyone who is interested (click to enlarge photos). [ATTACH] [ATTACH] I'm not...
While searching for a copy of an OMF fact sheet I stumbled across this web page: https://www.omf.ngo/resource-center-2/ It lists a bunch of...
I the read announcement and the nomination form (PDF) which covers a bit more about the nomination process. But I haven't found out how large...
Sorry, I don't have any references to actual research. My post was just meant to be quick summary of the announcement by the ME Action website. I...
Separate names with a comma.