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  1. Sunshine3
    Post

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    Thanks @rvalee....you always say exactly what u think so I'm delighted that you are impressed...you don't give praise unless it's well justified!!
    Post by: Sunshine3, Aug 22, 2019 in forum: General ME/CFS news
  2. Sunshine3
    Post

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    Good news so damn rare!!
    Post by: Sunshine3, Aug 22, 2019 in forum: General ME/CFS news
  3. Sunshine3
    Post

    Recruiting: ME Research UK: Investigating sensory processing and cognitive function in people with ME: a pilot study

    Great provided they use proper criteria and patients that suffer from sensory overload! I had it when I was moderate. Now I am severe it can be...
    Post by: Sunshine3, Aug 21, 2019 in forum: Recruitment into current ME/CFS research studies
  4. Sunshine3
    Post

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    Maureen Hanson's words were so powerful, certainly to the patient population.
    Post by: Sunshine3, Aug 20, 2019 in forum: General ME/CFS news
  5. Sunshine3
    Post

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    Thanks @Andy....maybe something will show up from somewhere else before a decade is up.. Here's to hoping! We have a number of researchers on the...
    Post by: Sunshine3, Aug 20, 2019 in forum: General ME/CFS news
  6. Sunshine3
    Post

    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    That response makes it sound like we are a long way away from anything that will help us. Glad to see the input but it seems like we are looking...
    Post by: Sunshine3, Aug 20, 2019 in forum: General ME/CFS news
  7. Sunshine3
    Post

    Fundraising for ME/CFS research - opportunities, problems

    I would point out that some of us have little else to spend our spare few Bob on... That's my situation so I donate as it gives me hope too. We...
    Post by: Sunshine3, Aug 17, 2019 in forum: General Advocacy Discussions
  8. Sunshine3
    Post

    Researcher Interactions Video: Science for ME Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019

    What worries me is anyone can use the app, so people misdiagnosed could well use it. Are we just going to end up with nothing meaningful from...
    Post by: Sunshine3, Aug 15, 2019 in forum: ME/CFS research news
  9. Sunshine3
    Post

    Fundraising for ME/CFS research - opportunities, problems

    I donate monthly to OMF. My friend recently did a sponsored cycle and raised a decent amount for UK ME/CFS biobank. I do all I can not just for...
    Post by: Sunshine3, Aug 15, 2019 in forum: General Advocacy Discussions
  10. Sunshine3
    Post

    Australia - Mason Foundation to investigate viability of ME/CFS Biobank - update - funding awarded for biobank

    What worries me is anyone can use the app, so people misdiagnosed could well use it. Are we just going to end up with nothing meaningful from...
    Post by: Sunshine3, Aug 15, 2019 in forum: ME/CFS research news
  11. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Yes!!!!
    Post by: Sunshine3, Aug 13, 2019 in forum: General ME/CFS news
  12. Sunshine3
    Post

    SCOPE : Q&A about chronic fatigue or Myalgic Encephalomyelitis (ME/CFS) with Dr Charles Shepherd

    There are a hell of alot unusual cases then..
    Post by: Sunshine3, Aug 10, 2019 in forum: General ME/CFS news
  13. Sunshine3
    Post

    David Systrom, researcher, Brigham and Women's Hospital, USA

    That made me laugh out loud!!!
    Post by: Sunshine3, Aug 8, 2019 in forum: ME/CFS research news
  14. Sunshine3
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    As far as I am aware OMF have at this point tested 65 patients and all test positive for IDO mutation.
    Post by: Sunshine3, Jul 27, 2019 in forum: ME/CFS research news
  15. Sunshine3
    Post

    Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from CFS/ME, 2019, Cabanas et al

    I felt Slightly encouraged after watching Don Staine's presentation. It's great to hear that they will be looking for treatments.
    Post by: Sunshine3, Jul 24, 2019 in forum: ME/CFS research
  16. Sunshine3
    Post

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    I don't get the need to constantly put down the positives. The testing on the nanoneedle has been 100 percent accurate so far. Ron Davis is...
    Post by: Sunshine3, Jul 8, 2019 in forum: General ME/CFS news
  17. Sunshine3
    Post

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Well one thing we haven't had in the past is the real potential of a proper diagnostic test.. The nanoneedle. This could be the game changer. I...
    Post by: Sunshine3, Jul 8, 2019 in forum: General ME/CFS news
  18. Sunshine3
    Post

    IiMER International Conference Week London 2019

    Has anyone any idea when YouTube clips will be made available from Conference?
    Post by: Sunshine3, Jun 13, 2019 in forum: ME/CFS research news
  19. Sunshine3
    Post

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Is Karl Mortem going to stick with us and stay working on M.E given this lovely news? I hope we won't lose him.. I haven't read through thread.
    Post by: Sunshine3, Jun 11, 2019 in forum: ME/CFS research news
  20. Sunshine3
    Post

    IiMER International Conference Week London 2019

    Thanks @Andy.. I had to smile that you didn't bother with notes on Unger's presentation!
    Post by: Sunshine3, Jun 9, 2019 in forum: ME/CFS research news
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