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  1. Sunshine3
    Post

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    Thanks but where does Fukuda fit into it? I can cope with IOM criteria but Fukuda is a joke.
    Post by: Sunshine3, Feb 12, 2019 in forum: Disease coding
  2. Sunshine3
    Post

    USA - NCHS/CDC Proposal for ICD-10-CM - adding SEID

    What does this mean for us... Is VA the CDC?
    Post by: Sunshine3, Feb 12, 2019 in forum: Disease coding
  3. Sunshine3
    Post

    Can a blood flow enhancer help our symptoms ?

    Not offended @Alvin, just don't agree. While he might be very enthusiastic at times, some patients like myself need that and appreciate it. God...
    Post by: Sunshine3, Feb 10, 2019 in forum: Orthostatic intolerance treatments
  4. Sunshine3
    Post

    Can a blood flow enhancer help our symptoms ?

    Cort does a lot of good work explaining latest research findings, I look forward to his updates. He provides a great service to our community.....
    Post by: Sunshine3, Feb 9, 2019 in forum: Orthostatic intolerance treatments
  5. Sunshine3
    Post

    Gary Burgess - The ME show, and updates about Gary's health.

    Just listened to episode 2 @Gary Burgess. You are such a gentleman, a fantastic interviewer with such a lovely voice. Really enjoyed the show,...
    Post by: Sunshine3, Feb 7, 2019 in forum: General ME/CFS news
  6. Sunshine3
    Post

    NICE guidelines: topic experts and the behind the scenes

    I fail to see any humour in the situation at the moment.
    Post by: Sunshine3, Feb 7, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  7. Sunshine3
    Post

    NICE guidelines: topic experts and the behind the scenes

    Can I ask are people here feeling any ways hopeful about NICE review? I'm feeling more deflated by the day.
    Post by: Sunshine3, Feb 7, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  8. Sunshine3
    Post

    NICE guidelines: topic experts and the behind the scenes

    OH my God, that is terrifying... It keeps getting worse
    Post by: Sunshine3, Feb 7, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  9. Sunshine3
    Post

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    She might surprise us yet @Jonathan Edwards The main reason we are not way ahead of where we are is lack of funding.
    Post by: Sunshine3, Feb 4, 2019 in forum: General Advocacy Discussions
  10. Sunshine3
    Post

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    I don't agree, I think most that recover have post viral fatigue. They don't have M.E. as per ICC. Nancy Klimas has said in one of her...
    Post by: Sunshine3, Feb 3, 2019 in forum: General Advocacy Discussions
  11. Sunshine3
    Post

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    Well maybe if doctors could diagnose M.E, there would be none of these nonsensical LP recoveries. It's not difficult to diagnose if a doctor can...
    Post by: Sunshine3, Feb 3, 2019 in forum: General Advocacy Discussions
  12. Sunshine3
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    Thanks @Adrian...great to hear positive news
    Post by: Sunshine3, Feb 2, 2019 in forum: General ME/CFS news
  13. Sunshine3
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    Thank you, that sounds reasonably promising. What brought about Holgate's change of heart? He treated Dr Geraghty terribly from what I just read....
    Post by: Sunshine3, Feb 2, 2019 in forum: General ME/CFS news
  14. Sunshine3
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    Sorry I am so clueless as I don't reside in U. K. What is Holgate's roll now and who is the present chair of the MRC... I gather the current chair...
    Post by: Sunshine3, Feb 2, 2019 in forum: General ME/CFS news
  15. Sunshine3
    Post

    Trial By Error: Action For ME’s Employment Advice

    They are very slow learners
    Post by: Sunshine3, Jan 30, 2019 in forum: General ME/CFS news
  16. Sunshine3
    Post

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    Vague
    Post by: Sunshine3, Jan 30, 2019 in forum: News from organisations
  17. Sunshine3
    Post

    Gut Neuroinflammation Connection Revealed

    Thanks @hixxy for making me laugh... I hardly ever laugh these days but you and your emojis made me giggle!!
    Post by: Sunshine3, Jan 30, 2019 in forum: ME/CFS research news
  18. Sunshine3
    Post

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    So they all present and then what? Is it going to achieve anything, like funding?
    Post by: Sunshine3, Jan 23, 2019 in forum: General ME/CFS news
  19. Sunshine3
    Post

    Changes in the transcriptome of circulating immune cells of a NZ cohort with ME/CFS (2019) Sweetman et al

    My sleep is desperate since ME started, it was hypersomnia initially, now complete insomnia. I've tried so many meds. I need some kind of horse or...
    Post by: Sunshine3, Jan 17, 2019 in forum: ME/CFS research
  20. Sunshine3
    Post

    STAT: 'The NIH is thwarting research on a poorly understood yet serious condition', 2019, Jennifer Spotila

    Check out @oslersweb’s Tweet: [MEDIA] Let's hope this time we make some strides....dog chasing tail comes to mind. Carol Head and ME Action...
    Post by: Sunshine3, Jan 13, 2019 in forum: General ME/CFS news
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