I disagree. I do not think it was adequately challenged. I would never ever recommend this documentary to anyone I know. It is way too vague in...
Bleijenberg: People with this illness have had it for a long time. More than 6 months according to the definition. They are so tangled up in their...
Unfortunately the TV-documentary did not deliver after the promising radio interview. Psychobabbler Gijs Bleijenberg gets too much of a podium:...
After the promising radio interview yesterday, with one of the documentary makers and the father of an ME patient...
Duplicate thread merged https://www.gameplanet.co.nz/news/g5a7cc864005d0/Robin-a-free-Kiwi-made-game-about-chronic-fatigue-syndrome-is-out-today/...
That I don't know. The initiative comes from Millions Missing Holland.
In the Netherlands I know of only 1 ME / POTS / Fybro specialist. His name is Professor Dr. Frans Visser. His clinic is called Stichting...
I don't mind this. Suramin trial will not even start within a year because Bayer is not interested....
Done
Not sure. My GP called it very mild reactive thrombocytosis and said it was pretty common tot have that slight elevation. No need for further...
Not familiar with Hemex / ISAC but was that marker increased Thrombocytes? I started having that in the years leading up to illness. Doc did not...
Your english is really good Albgirl. 100% understandable what you are saying here. If you suspect you are suffering from ME besides Radiculopathy...
It's not really a hallmark symptom of ME; have you seen a specialist yet? (question also based upon your introduction post) I mean forums are...
Thank you for your input @Hip ! Will try the breathing test. I have read the Ramsey's disease ebook a few weeks ago. Very interesting. I have...
But you don't want to be walking with a weird hospital-looking-thing on your index finger all day, that is why I also went on a search for an...
You're welcome. Just see if you can compare it to another device sometimes (if available) when you get weird readings or spikes. The SP02 meters...
I did, many times. I cannot see any correlation with activity or breathing. I have been using device also before I became very inactive. Even then...
If you press and hold down button on the right it will show your heart rate continuously.For other questions I would have to refer you to the...
I use a pulse oximeter because it is more accurate in monitoring my heartrate than smartwatches or fitbits I’ve tried. [IMG] I noticed that my...
As I understand it many people with ME also have a confirmed POTS diagnosis. When I got very sick in 01-2016 the first specialist I saw was a...
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