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  1. TigerLilea
    Post

    Orthostatic intolerance

    When I had the test done I had to stand for 30 minutes.
    Post by: TigerLilea, Apr 29, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  2. TigerLilea
    Post

    Peace Arch News: White Rock woman shares her struggle with "horrendous" fatigue

    White Rock is in my part of the world. For the most part, when there are media reports about ME/CFS in Canada, they tend to be positive stories...
    Post by: TigerLilea, Apr 28, 2019 in forum: General ME/CFS news
  3. TigerLilea
    Post

    How many of you have cats and how many have been tested for cat scratch disease?

    Toxoplasmosis and Cat Scratch Fever are two different things.
    Post by: TigerLilea, Apr 28, 2019 in forum: Laboratory and genetic testing, medical imaging
  4. TigerLilea
    Post

    How many of you have cats and how many have been tested for cat scratch disease?

    I've had cats pretty much all of my life and I've never had cat-scratch disease. And Lord knows I've been scratched many many times over the years.
    Post by: TigerLilea, Apr 27, 2019 in forum: Laboratory and genetic testing, medical imaging
  5. TigerLilea
    Post

    Fludrocortisone

    I'm not bed bound but I did try using it many years ago to see if it would make any difference to my ME/CFS symptoms. Unfortunately, other than...
    Post by: TigerLilea, Apr 22, 2019 in forum: Orthostatic intolerance treatments
  6. TigerLilea
    Post

    Suddenly my head spins

    An inner ear infection?
    Post by: TigerLilea, Apr 13, 2019 in forum: General and other signs and symptoms
  7. TigerLilea
    Post

    Fecal transplants in ME/CFS

    I'm curious as to how you know that 'low quality donors' are being used??
    Post by: TigerLilea, Apr 6, 2019 in forum: Nutrition, food sensitivity, microbiome treatments
  8. TigerLilea
    Post

    Anyone with ankylosing spondylytis ?

    @Dechi Could you possibly need a new mattress for your bed? I started getting hip pain while sleeping which turned out to be a mattress issue....
    Post by: TigerLilea, Apr 5, 2019 in forum: Immune: Autoimmune and Mast Cell Disorders
  9. TigerLilea
    Post

    Does anyone here get worse in relation to stress?

    My main symptom of ME/CFS is fatigue in the form of extreme exhaustion. It has been like this from day one. It most definitely is not 'relatively...
    Post by: TigerLilea, Apr 3, 2019 in forum: Post-Exertional malaise and fatigue
  10. TigerLilea
    Post

    ME from stress ?

    My ME/CFS started three days after taking oral penicillin for two badly infected teeth.
    Post by: TigerLilea, Apr 3, 2019 in forum: ME/CFS research news
  11. TigerLilea
    Post

    Complement levels - C3 and C4

    I was tested in January and they were 'normal'.
    Post by: TigerLilea, Apr 2, 2019 in forum: Immunological
  12. TigerLilea
    Post

    A Validated Scale for Assessing the Severity of Acute Infectious Mononucleosis, 2019, Jason et al

    I'm the only person I know that had mono who later went on to develop ME/CFS. And that was 14 years later.
    Post by: TigerLilea, Apr 2, 2019 in forum: ME/CFS research
  13. TigerLilea
    Thread

    Poll - Have you been tested for Sjogren's Syndrome?

    I'm curious to know how many other people with ME/CFS have tested positive for Sjogren's syndrome. I was recently tested and came up positive for...
    Thread by: TigerLilea, Mar 17, 2019, 9 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  14. TigerLilea
    Post

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    I have tried the B12 injections and d-ribose. As far as prescription drugs I have not yet met a doctor who will prescribe random drugs simply...
    Post by: TigerLilea, Mar 8, 2019 in forum: ME/CFS research news
  15. TigerLilea
    Post

    Making payments into your UK State Pension to ensure you get a pension

    It makes me wonder if this is something that I can do here in Canada. I'll have to check into it.
    Post by: TigerLilea, Mar 8, 2019 in forum: Work, Finances and Disability Insurance
  16. TigerLilea
    Post

    Do you get post-exertional malaise from being outdoors?

    No. Being physically active for too long causes my PEM. Indoors or outside. Any time of the year.
    Post by: TigerLilea, Mar 8, 2019 in forum: Post-Exertional malaise and fatigue
  17. TigerLilea
    Post

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    Nope! Not a one. I have not found a single drug or supplement that has helped in any way regarding my ME/CFS.
    Post by: TigerLilea, Mar 8, 2019 in forum: ME/CFS research news
  18. TigerLilea
    Post

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    Wasn't Penny a moderator for Dr Marshall's forum? Or was she also involved with CFSExperimental? When I was a member of the later group I believe...
    Post by: TigerLilea, Mar 6, 2019 in forum: ME/CFS research news
  19. TigerLilea
    Post

    ME/CFS and permanency

    I owned that book many years ago but have long since gotten rid of it.
    Post by: TigerLilea, Mar 4, 2019 in forum: General Advocacy Discussions
  20. TigerLilea
    Post

    ME/CFS and permanency

    I think it was Dr Bell who originally stated back in the 1990s that if someone didn't recover in the first five years then chances were that they...
    Post by: TigerLilea, Mar 4, 2019 in forum: General Advocacy Discussions
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