@Invisible Woman Yes I went on a couple of retreats many years ago and it was so wonderful. Quiet, meals provided and often being around others...
Not to mention old people’s homes. I dread the fragrances for a start!
Yes of course, in the current climate it is potentially unsafe, and my friend was extremely worried about going to any bed in a psychiatric unit....
We really need something like this in the UK. We need care homes that are suitable for us, so that if we are unable to stay at home temporarily or...
so sorry you had to attend in person. I was so relieved not to have to get to that stage as it would be very difficult to do, as I am sure it was...
Yes I agree. The (almost) constant benefits battles and resultant fallout have such an impact. To be free of that would quite probably lead to...
Thanks @adambeyoncelowe Yes Andy it won’t change in the meantime, but it makes no sense even now. Not to me, anyway! The attitude seems to be...
yes I do get PIP and we are coping ok overall, but I just feel it’s wrong that no-one actually checked! How many GPs have I seen over the years,...
yes, I have heard stories of this attitude as well and I think it accounts for the seeming inconsistency of admitting we can be severe, but then...
I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the...
It’s definitely not enough. I have had various apparently expected issues with drugs (including bad withdrawals) which were not on the leaflet. I...
I have signed the card. I think it’s always worth speaking up, even if it seems pointless. Saying that, I have given up with my MP as they...
@Invisible Woman Absolutely agree. Young kids are not driven perfectionists and most people’s lives look busy and overworked before they get ill....
absolutely. Telling people that they should be grateful for some side gains is inexcusable. We may sometimes feel grateful for small things but...
I would like to see the results of this too.
Thinking about this, I would say to a GP that I have neurological symptoms and also immune symptoms. I don’t think we have to know the cause or...
Yes true. I wouldn’t dare say PENE to a GP. Post exertional symptom exacerbation is the basic truth. We desperately need more facts! It’s very...
I interpret as a flare of both immune and neurological symptoms which feels like what is happening. We may not know exactly what’s happening but...
I am so pleased you have responded well to the pyridostigmine. I am going to ask about it this year. I find it hard to get on with trying new...
Thanks @JemPD i see there is a spray for the air there. I could suggest they switch! Thanks @Invisible Woman interesting idea to steam the air...
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