@Arnie Pye NAC is widely used to break up thick mucus regardless of cause. I am happy to use it for some symptom relief for longer or shorter...
Exactly. Every time limited resources are spent on things most of us has tried and dismissed already, it feels like a step back, not forward.
The insect crawling is typical for pheripheral neuropathies. I had the cold water part for years. Have since discovered that during better...
I have been told that these symptoms are Neuropathies. Nerve pain, as someone mentioned above, is quite different and often an isolated problem...
Good point, but I think hydrocortisone is special there. That is also the case for non-ME-patients. Should have specified Immunosuppressants other...
Only reason I can see is if it is masking symptoms/giving a false feeling of effect and/or making one ignore symptom -> use more energy than one...
[MEDIA] [MEDIA] @Jonathan Edwards I’ve seen many tweets like this from VanElzakker. Does it make sense to you in a rheumatologist perspective?...
Exactly. I am already picturing all the Success Stories media are going to drool over for a decade...
@Mithriel it can be emotional on many levels. I find it tough to read doctors admitting lack of empathy/understanding of our symptoms until...
I also think there could be possible benefits from having Long-Covid being researched from scratch without the connection. If they discover...
I don’t see a problem with warning against pushing yourself and at the same time not calling it ME. It is already done. If a hard training top...
Hard agree. I would even go as far as to difference between ME after 1 year and chronic ME after 3-5 years. 3 years if no improvement/worsening of...
This got me thinking, and it made me start a new thread...
I do of course see the hope and positive possibilities in this. But I’m starting a thread for discussing concern around it as well. Please have...
CNN reporter Richard Quest: I got Covid-19 two months ago. I'm still discovering new areas of damage...
FYI: I think non-profit organizations have access to unlimted Numbers watcing upon request during COVID-19.
I miss a bit more info on the differences between PEM and the kind of fatigue/sensory overload other chronically diseases get after pushing...
Good to hear that you were taken so good care of. Would it be possible for you to ask to be put on a waiting list to become his patient if he has...
You were right to make the call. A new headache or a new kind of headache should always be mentioned to a doctor. @InfiniteRubix
It does. Thank you!
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