I have a similar problem but I don't know if it is the same as I have rashes, and dry, broken and bleeding skin. It is worsened by many...
Perfusion, perfusion, perfusion ... IMO poor perfusion is the key to understanding the symptoms of ME. All (or most) physiological processes work...
Yes, but I'm not very active on Twitter.
He is coming across as reasonable and listening, but making ME guidelines look like a matter of opinion and debate, rather than evidence. Possibly...
On the face of it, the Sunday Times article is the author’s work in which he expresses his personal opinion with the best intentions. I see...
How many patients say they have done the activities prescribed when they have not (because they can't or because it makes them feel worse), and...
By abuse, I meant that if I were an unscrupulous researcher I could complete the survey as if I was a patient or carer and submit questions that...
Thank you @MEMarge
I've added another question: Can we have more research into pain and its physiological correlates in ME patients, particularly in association with...
I remember that at the time Flegal's paper was published. The criticism was astonishing. I've since realised that a false narrative for obesity is...
In the absence of a biomarker, we can only define remission on the basis of symptoms, and since PEM is the hallmark symptom, a total remission...
Here are my questions in full: 1. Is ME best understood as a form of cardiac dysfunction? It is clear from the widespread symptoms that the...
These are my questions and comments: I have grouped my questions into 7 main questions. There is space for three questions and one comment on the...
Thank you. I considered "deterioration" and "exacerbation" but I'm not sure that they are appropriate either. The term "escalation" was used in...
Thank you for your definition. I'm sorry to hear about your relapse. May I ask if you were taking immune modulators for ME or another condition?
Can you define relapse? I assume it is preceded by a recovery or remission. I experienced gradual worsening over several years then a sudden...
My experience was the opposite. I thought the onset was gradual, as I was gradually getting worse with time. Only after diagnosis did I realise...
I know exactly what you mean and there is no easy answer. I found it very difficult to cope with not working and I had many dreams about work. In...
Surely it should be called COVID-19. Recognition of the long term effects in some patients should not depend on giving it another name. If you...
Hi MerryB, I took midodrine for about 2 years. The side effects were difficult to tolerate and I had to start at a very low dose and was never...
Separate names with a comma.
