Thank you @Trish a very useful thread. I will follow up on the links when able to. I am particularly interested in working out what of our...
Just had the thought that, though sleep disturbances are a regular feature of ME, I don't think I recall anyone mentioning any issues arround...
There is a risk to the entire MUS edifice if GET/CBT and PACE get dumped for ME, as this is about the only evidence they have. Also if this...
For me in the early years post onset, I was still working so I had no choice but to leave the house at 8am and keep going through the day, also I...
I second this. Not a good afternoon for me, did too much this morning, so grateful to be able to dip in and out of this thread. Thank you to all...
I agree with this. It is important that people explore the 'sleep hygiene' ideas to see if they can find things that help them, but there are no...
Protecting the status quo.
Difficult to answer the question as at present my sleep is quite good, but like others the slightest thing destabilises it and at times I can get...
Not with it to read everything properly, but a first thought is that this weakening of evidence considered as relevant is potentially both bad and...
Try not to worry much about this. Not only do most of us respect your ability to make good choices, but it is important you work on the things...
MPs don't have to attend a debate to vote, but they do have to be present in person at the vote. I think the motion is carried or not the basis of...
My first thought is that any one sided weakness should be refered immediately to a doctor as one of the potential causes is a stroke which is most...
The political masters have been informed over and over again of the real life the consequences of their policies. In relation to the DWP the...
My feeling is that the problems in the UK are not with the structures in Whithall but the politically generated culture that has developed in a...
Is a journal likely to be legally liable for any harms that result from actions based on research they have published once its flaws have been...
Frustrating that this article is behind a paywall, as I believe what they are attempting to do is very important. Reading the abstract raises...
Thank you @Trish for writing and sharing this clear and important letter.
My personal experience of CBT was of the 'right' form, and on the last day of the intervention I would have reported it as being helpful, but...
I suppose this will depend on how the data from the survey is analysed/reported. If the 'right' form of CBT is helpful in ME then a percentage of...
Although I have sympathy for the idea that there is a 'right' and a 'wrong' form of CBT for people with ME (the 'right' being CBT to help people...
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