I share your concerns, but do think we should be encouraging people to ignore the problems of the definitions from NICE which prejudge the issue...
One of the questions asks for part of your post code, so this should only be completed by people resident in the UK which is a shame.
I have now completed the questionnaire and do feel it is useful, though with CBT it avoids addressing the the issue of CBT as a management tool as...
I should add that Forward ME does not endorse these definitions:
I started to look at the Survey and was concerned about the descriptions of both CBT and GET as 'evidence-based' seemed to be prejudging this...
There are additional problems with PACE, including use of the Oxford criteria (no studies based on the Oxford criteria are relevant to ME/CFS),...
A rather depressing thought for us in the ME community in the UK, as though some of the BPS cultist are at retiring age, there is still a number...
I forget the source, but wasn't there a study suggesting that the rate of misdiagnosis within even patients seen by specialist CFS Services might...
When I was seen at a UK CFS clinic they insisted I had a consultant diagnosis before they accepted the referral from my GP; at the clinic I was...
I would have liked to see an option on understanding the negative consequences of extertion and that exercise is generally counter indicated....
Have only read once David Tovey's response to Caroline Struthers' complaint about the Cochrane Exercise Review, so far, and find it very confusing...
Cochrane seem to now have decided that ME/CFS will be moved from the Comon Mental Disorders group, though are not saying where we will be moved...
A useful piece, thank you @dave30th . It is interesting to look at the SMC back catalogue of press releases and briefings in relation to ME over...
As pointed out in the thread that @Sly Saint links to in the above post, the Bristol Randomised Trials Collaberation includes Crawley's MAGENTA...
I wonder if it would be better to present this as two separate questions, one about frequency and one about impact on the ME rather than giving...
I had thought we had done a poll on whether people had less, had the same or had fewer colds and flues following the onset of their ME, but I can...
This does raise questions about the effects of the isolation and reduced sensation and reduced opportunities for intellectual engagement that goes...
I just looked at this link and noted the phrase "He is actively engaged in evidence-based medicine". Why does my heart sink when I read the phrase...
Is this a signal for @dave30th to write another email to the BMJ?
As well as the issue of picking out the balance of citations that are critical, as is probable with a significant proportion of the PACE ones,...
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