Yes, at least a version of it. It seemed like a typical broad set of questions you see on scales looking to assess mood and behavior. I think the...
Yes we work with Sarah Knight and they are experienced with using these surveys. They publish on MRI work and not on these surveys, my impression...
No I I think I misrepresented that. A report is made from neurocognitive testing that includes the BASC, the report goes to the parent. The parent...
Well the ME/CFS cohort is wildly variable. Different triggers, different symptoms, different severities, different co- morbidities, different...
We as a team are responsible for overseeing the project that it's sticks to the ethically approved protocol, the neuropsychs are responsible for...
FUNCAP was not published at the time we began recruiting for this study unfortunately. Would have liked that to be part of this, it's in all our...
Yes that's about right. The plan is that omics work will be published independently. There is potential to combine for a later paper if someone...
"Complex" term I'm using is intended to be short for complicated, multiple factors and heterogenous.
Yes the participants and guardians are provided with the full information of what will be performed during the study prior to their consent.and...
Yes it could have been done on adults but we felt there was little biological research on pediatrics, felt it was a section of the community being...
I myself have been assessed by HADS a couple times, it never led to a diagnosis of anything. I do find it troubling that others have found...
That is indeed shocking, to think a few questions could be a diagnosis. The lack of physiological knowledge in this disease has lowered the bar...
That would be problematic, I haven't had any inkling from the people we work this that they view ME/CFS as a psychopathology, they focus on MRI...
Not yet, I will have a look and post on that thread in future.
I guess I would say that information or questions aren't biased, they are just data. People are biased, people interpreting the data can be...
I'm very sorry to hear about your son and the negative experience you've had with clinicians. This disease is awful and the lack of knowledge...
Wouldn't we be providing bias by targeting the removal of specific questions I don't like the sound of from a standard scale? The paediatricians...
Some studies have provided evidence to cortisol dysregulation but I wouldn't say it's strong evidence. Perhaps relative to other evidence in the...
This was a collaborative study between clinician researchers at the local children's hospital and us. The pics aspect is quite distinct but we...
These are conducted with neuropsychs and feedback reports are provided to families. This all works closely with the paediatricians at the hospital...
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