Yeah you can track symptoms as many times s you like over the day. I was just using an example in my description of day to day. But certainly it...
Yeah Braincheck but any tests that assess executive function or processing speed are fine.
Yes it will be free for others to use once ready for release. We will beta test with patients very soon. Because of it's novelty we are actually...
Very good points you raise. The slider isn't set 1-10, it is more like 1-100, so you could describe something at 55 and describe the other at 57...
It's not the features, it's the way they are tracked. We have the problem of reliability of a symptom experience being accurate based on a scale...
Do you mean how they feel? FUNCAP looks the best to use right now because it captures the patients perception of their functional capacity....
Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were tracked...
There will be significant variance. It's relying on the treatment journey of hundreds of people. There will likely be a lot of overlap of...
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset for a...
I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really about...
Yes this is very much in the space we are looking. Urine output, urea cycle (nitrogen metabolism), hormone production, blood flow, energy...
Thank you. I agree with you on the role of B cells in the disease. I'm more interested in their unusual behaviour, which may be due to the...
I have a couple questions for you regarding the B cell work.. - CD38 is known to degrade NAD+, removing the NAD+ pool would reduce the speed of...
Have previously measured NFL in ME/CFS patient serum vs controls. Found no difference. Didn't measure GFAP though.
Always appreciate input like this. Thank you
I think because it's most common along with PEM but PEM is harder to measure. The FUNCAP is probably a welcome step forward in that it's measuring...
I think some of the same physiology described here is used to try understand the vascular abnormalities.
7-8 in a scale out of 10 That's probably expected right? "I have this symptom, it's bad but it's not the worst I've ever felt right now, 7-8 out...
Sham will be a reduced volume infusion yes. It's not perfect I agree but by giving each patient 4 infusions we expect that each may feel a little...
I think clinicians provide the first layer of evidence this is how trialling Rituximab and Ampligen came about. Then it comes down to a design...
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