Quotes Monica Gandhi, who's known for minimising Covid-19. Also - “Generally, if you’ve got true flu, you’re bed bound. With Covid, you might...
If I remember rightly, one of things Miranda Hart's messages was about giving other sufferers hope. It may sound thoughtful, but I don't think...
Too stupid at the moment to post the link, but there is an absolutely beautiful piece on #ThereforME by Maeve's best friend.
I expected a fob off, but my feeling is that the BBC sees the effects of political decisions on long term sick and disabled people as human...
This was my level 2 complaint - My complaint concerns the then Government's intent to fund cuts to NI by cuts to disability benefits. Your...
Reply from the BBC ECU - Thank you for your email to the Executive Complaints Unit. You complained that BBC journalists failed to question...
Just a thought - if David Puttnam has an interest in ME, he might be able to make a TV series/film/documentary happen.
Benefits and Work have published a guide to claiming PIP for ME/CFS and a summary on their webpage....
In 2012 George Osbourne was booed when he entered the stadium and there was outrage that some Paralympians lost their benefits. I am worried that...
I don't think anyone thinks pwME could safely be taking part in the Paralympics. It's troubling though that such a high profile organisation,...
This ignores my main point that journalists failed to interrogate ministers about the negative effects of the policy on disabled people. My...
I've at last had a response to my complaint to the BBC. (I failed to complain to other broadcasters.) This was the 1b stage. 1a response was...
Thank you for this @Joan Crawford. It took me a lot longer than 20 mins - it could have been as much as three hours in all, but it'll be shorter...
Just catching up. That's amazing and such a contrast with other organisations' behaviour. Congratulations to Trish and all involved in writing...
Hmm - So, rate of being overweight is the same as the general population. Losing weight may help some non-ME LC sufferers but this isn't a...
This seems like a positive paper. I just don't understand Greenhalgh though. Sometimes she seems to get it, but then she's so hostile to...
All physical symptoms are signs of mental illness, but mental illness doesn't exist. Handy in getting rid of the pesky patients, but he may not...
A related story https://www.bbc.co.uk/news/articles/cewl59xyke9o Woman with paralysed stomach told she was anorexic
I don't like this use of 'feeling sick' in a questionnaire. Does it mean feeling ill or the specific symptom of being nauseous? I know there's...
I do get "hard limits" when there is literally nothing. I'm on the floor and I can't move. Not only due to exertion - I can be in bed, unable to...
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