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  1. tornandfrayed
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    Closed UK: DecodeME updates, was recruitment thread.

    I started yesterday, but have paused to consider whether I want to allow access to my medical records. I have a lot of trust in the DecodeME team,...
    Post by: tornandfrayed, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  2. tornandfrayed
    Post

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    Another worrying aspect is that they want to dive in early in the disease progression with their exercise/CBT research. At the very point where...
    Post by: tornandfrayed, Feb 22, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. tornandfrayed
    Post

    The new NICE guidelines - do they affect benefits at all?

    Like Kitty, I just can't make myself read through my assessment. I find it too distressing. My PIP decision was both enhanced for 10 years, so I...
    Post by: tornandfrayed, Nov 20, 2021 in forum: Work, Finances and Disability Insurance
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