To me it is less about predicting cause and effect and more to do with convenience in conveying meaning. There are very broad labels that don't...
The sense I get is that it trends towards the orthostatic intolerance bucket. In the study they assessed the records of people who had underwent a...
I have no idea about specific treatments in autism and obviously would not advocate for any treatments that cause more harm than good. I just took...
I'm not sure that is quite the case. They are saying that autism can be part of someone's identify and is not necessarily a bad thing that society...
I think it is likely that orthostatic intolerance might lead to a feeling of PEM in some or many cases. However at this point we don't know what...
That makes a lot of sense to me, thanks
I am not hypermobile so I don't have real personal interest in this area, other than curiosity. I would agree that if it were just the two EDS...
Very interesting, that is something I haven't seen before. While it does seem like a crude measure with many cofounding variables, I too would be...
I like this idea. My orthostatic symptoms do sometimes feel how I would imagine it is to bleed out. On my tilt table test, as my heart rate...
This seems like a reasonable explanation for some of the orthostatic issues that pw ME/CFS face. However, from my own experience I think it is...
The sample size was so small that by hunting around in the data you could have found a way to support any number of hypothesis. Especially with...
Probably not the right thread for it, but they did look at 197 unrelated hEDS patients a found a third has this kind of variant.
Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic etiology. To...
Well CBT and GET has been tested and shown not to work. If we had no data on these treatments at all I would be fine with a study being run. But I...
Any treatment trial in ME/CFS would receive pushback from many people and for good reason. All sorts of treatments only seem to work in certain...
I would really like more work to be done on orthostatic issues. For me this is one area where I think progress can be made with just a few well...
It could be the 250ccs of saline that contributed to improvement (although I would think that would only be temporary). Do we know how often the...
I am of the opinion that besides some general demographic data we can't know too much aside from whatever the diagnostic criteria require. The NIH...
I have found LDN helpful, and have taken it for a few years now. Of course it could be placebo, but I have tried plenty of drugs and its the only...
That makes sense. Maybe it's possible for there to be temporary differences in blood flow in and out but after a while the blood would force its...
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