Can anyone point me to some information on patient involvement in the design of the PACE Trial? I know Action for ME were involved (why them?) and...
Thank you Arvo, for taking the time to provide such a detailed and relevant response. I feel very reassured. You have raised some very good...
Also, I think I'd struggle to facilitate any interviews with healthcare professionals. I tend to avoid them ... like the plague :)
Ileana did mention that it might be good for the student(s) to interview patient(s) directly. This project will be based in Amsterdam, The...
This has been SO HELPFUL. Thank you Arvo. You're so right. It does feel scary. I do feel insecure. I (probably) do know more than I realise. I...
Ileana is also interested in how such harmful practices affect women minorities neuro-diverse folk LGBTQ+ folk She is well aware of how quickly a...
Things Ileana and I have talked about over the years which piqued her interest: 1. Eminence over evidence How a powerful group of lobbyists...
I was so hoping for a response like this. Thank you @Hutan !! I think this is a great idea. I will take this on if I have to ... but I still...
Here's the link (again) to the course: Participatory Action in Research and Education @adambeyoncelowe You would absolutely nail it! You tick...
Someone I know, who is a lecturer and researcher at Amsterdam University, has asked me to be an external collaborator (‘co-creator’) in a course...
Good point!
The article is so serious and heartbreaking. Yet in spite of this, this John Glasspool chap, still finds it in himself to provide a flippant...
Greenhalgh really does avoid mentioning ME/CFS on purpose, doesn't she? The opening statement says unequivocally, "Long covid ... is a new...
More scholarly articles here: https://scholar.google.co.uk/citations?user=f9Hgom8AAAAJ&hl=en&oi=sra
She is also the author of the blog, 'Healthcare Hubris'. Example here:...
Joanne Hunt is AMAZING!! Here's a piece she wrote entitled, "Biopsychosocial Model or Bio-political Ideology? Medically unexplained symptoms,...
Would it include alcohol intolerance? I literally went from being able to drink a fair amount with few adverse effects = pre ME/CFS to going...
I came across this article by Jennie Kermode, "The Cass review: trans care or trans scare?"...
I've managed to download it now. Sorry to have bothered you!
Hi Andy. I can't seem to find a link to this anywhere. Not one that works anyhow. Any ideas? Has it been removed? If someone can send me a link,...
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