1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 3rd March 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 3 of 6
  1. Lidia Thompson
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Well, they've just managed to raise nearly £300k! [MEDIA]
    Post by: Lidia Thompson, Sep 7, 2023 in forum: ME/CFS research news
  2. Lidia Thompson
    Post

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    Indeed. Your pseudonym, 'Sly Saint' evidently describes you well :thumbup:
    Post by: Lidia Thompson, Aug 24, 2023 in forum: UK clinics and doctors
  3. Lidia Thompson
    Post

    UK doctors knowledgeable in ME/CFS?

    Yes. That doesn't surprise me. Early on in my disease, I lived in Fife in Scotland for a few years (3 decades ago) and even back then, the support...
    Post by: Lidia Thompson, Aug 23, 2023 in forum: UK clinics and doctors
  4. Lidia Thompson
    Post

    Plasmapheresis to remove amyloid fibrin(ogen) particles for treating the post‐COVID‐19 condition, 2023, Garner et al

    "Nico Pretorius is an entrepreneur and engineer and the husband of Resia Pretorius and has a personal connection to this work."
    Post by: Lidia Thompson, Aug 9, 2023 in forum: Long Covid research
  5. Lidia Thompson
    Post

    Plasmapheresis to remove amyloid fibrin(ogen) particles for treating the post‐COVID‐19 condition, 2023, Garner et al

    Here's a thread on twitter from Nico Pretorius on the issue: [MEDIA]
    Post by: Lidia Thompson, Aug 9, 2023 in forum: Long Covid research
  6. Lidia Thompson
    Post

    Plasmapheresis to remove amyloid fibrin(ogen) particles for treating the post‐COVID‐19 condition, 2023, Garner et al

    This a response from Nico Pretorius and Asad Khan to the above-mentioned paper: Critical Reflections on the Cochrane Review of Long Covid...
    Post by: Lidia Thompson, Aug 8, 2023 in forum: Long Covid research
  7. Lidia Thompson
    Post

    Improving images used to depict ME/CFS

    I have been having a fight with myself as to whether to post the following link. (Depicting ME/CFS with the respect it deserves is so important.)...
    Post by: Lidia Thompson, Jul 29, 2023 in forum: Advocacy Projects and Campaigns
  8. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    ME/CFS News has just pointed out that Alan Carson and Jon Stone are editors of the JNNP. [MEDIA]
    Post by: Lidia Thompson, Jul 25, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  9. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The truth of the matter is, that the letter of response from MEAction UK, although put together in a hurry, was very good. Indeed, it was TOO GOOD...
    Post by: Lidia Thompson, Jul 25, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  10. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I feel devastated. I hope this is a mistake: Having realised that the letter was printed twice, that they are remedying the mistake. If a...
    Post by: Lidia Thompson, Jul 25, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  11. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Bang on the mark. I've never seen it put so clearly before. It's like when someone is addicted to a substance but realises they need to stop...
    Post by: Lidia Thompson, Jul 21, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  12. Lidia Thompson
    Post

    United Kingdom: ME Association news

    I think Charles Shepherd is wonderful. I don't know how he has managed to keep going during the bleakest years in the UK regarding ME/CFS....
    Post by: Lidia Thompson, Jul 19, 2023 in forum: News from organisations
  13. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I hope it's ok to quote oneself! This comment has now disappeared from under article. What a strange world we live in.
    Post by: Lidia Thompson, Jul 16, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  14. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Wow. This is a really good read. Thanks Robert. Although the thread does not come to a firm conclusion, I do feel better informed having read it :-)
    Post by: Lidia Thompson, Jul 14, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  15. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I appreciate you taking the time to clarify this. Thank you.
    Post by: Lidia Thompson, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  16. Lidia Thompson
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    There is one comment from a GP (I think) under this article: "David Jarvis 13 July, 2023 3:07 pm Any guideline with ME in the title is going...
    Post by: Lidia Thompson, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  17. Lidia Thompson
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I have noticed that the Guardian article has been amended since the original posting. The following chages were made: 1. Syndrome has been...
    Post by: Lidia Thompson, Jul 10, 2023 in forum: ME/CFS research news
  18. Lidia Thompson
    Post

    Research news from Bhupesh Prusty

    Haha. So it is!
    Post by: Lidia Thompson, May 9, 2023 in forum: ME/CFS research news
  19. Lidia Thompson
    Post

    Research news from Bhupesh Prusty

    Great news. Bhupesh Prusty et al's research article can be read here:...
    Post by: Lidia Thompson, May 9, 2023 in forum: ME/CFS research news
  20. Lidia Thompson
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    There's another thing they could do with taking into account: Those that have been ill for a long time and particularly those who were very sick...
    Post by: Lidia Thompson, Apr 24, 2023 in forum: ME/CFS research
Showing results 41 to 60 of 102 Next >
Search Again
Page 3 of 6