Getting good photos is a challenge, for sure. That's partly what prompted our interest in images: our experience trying to find photos for our new...
I have been severe in the past. The reason there are three of us as a team from ME/CFS Australia is that I am still mostly bedbound and have...
It's available as a PDF via Xavier's website: https://www.xaviergimeno.net/files/CFS_symbolic_violence_1en.pdf
I have Ulcerative Colitis and when that is flaring, I have massive, debilitating fatigue. It is nothing like ME 'fatigue' at all. It's a pure...
I have been involved in a Cochrane review that was rejected and will be published outside Cochrane. It is certainly possible to use the structure...
I agree with those who describe the paper as incoherent and appearing to have been written to support a pre-existing theory. (Maybe I just agree...
I am a little lost here. Is there any information on differences between the two groups other than the muscle membrane excitability grouping? Some...
I can't claim to understand the software they used, but if you simply look at the data points, there is a rough alignment with the direction of...
It is worrying that the "placebo" was not recognised as a treatment. Many people with ME report significant relief from saline infusions. The...
Yes, I get the same PEM as if I had struggled to do whatever I have done, in terms of when it hits, how severe the PEM is, and how long it takes...
Placebo in other conditions has been carried out by placing the clip on the ear lobe rather than the tragus, which assumes that the trial...
Not that I am aware of. The problem, as far as I can tell from the web, it that both Nemos and Vitos are preset for specifically epilepsy and...
It's worth noting that the Parasym is not available everywhere. So it will be helpful if the TENS approach can be sorted out. In the UK you can...
Regardless of the hypothesis, those of us using TVNS love it. I have just had a phone call from someone wanting help to set up her new device,...
Thanks for that. I have emailed Katlyn. Many of us with ME have POTS and I have certainly noticed changes since using the Parasym. My heart rate...
We have yet to get a researcher interested in supervising a formal trial. We are working on it! In the meantime, our experiences should be very...
It's a personal anecdote. Right now, the increasingly large group of local people who are experimenting with TVNS (Transcutaneous Vagus Nerve...
It was wonderful to identify the impact of the patient submissions. One of my friends was able to quickly identify a sentence that she proposed,...
Please, when a member of the Committee, who has had ongoing access to confidential information about the Report process and the work done before...
Thanks! I have asked our web person to take the article down. He has been very unwell and it may take a day or two.
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