Oh and also Fluge and Mella are beginning pilot studies using the CD38 monoclonal Daratumumab - which additionally targets plasma cells (which...
Agree that the things have been worth looking forward to are Prusty's biomarker, NIH intramural study and decode ME. Prusty's paper isn't out yet...
Too long, didn't read: Using some python libraries I have a set up which can track eye movements using a webcam. It does ok at detecting large eye...
Yeah I think that's true and it also depends on the type of video game. There are some that require high reaction times and some that require a...
I want to try and test some different measures of cognitive exertion and want to document some thoughts here that I might update later (or more...
Just checking to see if they see these genes in Ahmed & Grimson 2022's single cell RNA seq paper where they find some monocyte abnormalities in...
That's brilliant thankyou. You're right that if you scroll back far enough you can see @ahandvanish did retweet. There's no straight forward way...
I was just speaking to my british friend with long covid who is very integrated into the online community. I was surprised to find out they had...
In light of the other thread on actimetry I was just thinking again about the discussion i think in this thread about how to measure different...
For sure there's no stopping a disingenuous interpretation of the results. Obviously there will be a correlation between inactivity and fatigue...
Looking at Prusty's talk I think he is doing sensible experiments. The biggest problem is that his sample sizes are way too low which makes a lot...
Afaik our understanding of the fatigue in ME is that it is extreme and exertion makes it worse. This ought to be enough for a doctor to take it...
@Andy or whoever might know. Is there any particular reason why 20,000-25,000 people was chosen as a target? Is there a power calculation...
Also I asked it for a paper that showed what it was saying, and it gave me a paper which doesn't exist! A paper whose name existed, but not from...
I love the idea of this for asking pointed academic questions but unfortunately a lot of the time it seems to be answering with complete...
@Andy Perhaps you've already thought of this: An idea to recruit more patients that aren't already in ME networks could be to encourage...
Is it possible to get biopsies from lymph nodes? Or is this too invasive and dangerous to do? Do you think there would be much to be gained from...
@Trish @Keela Too These are understandable positions. The way this disease fluctuates makes it almost impossible to attribute cause and effect a...
@Keela Too Thankyou I really appreciate your comprehensive reply, there's lots to think about. I'm in a way surprised about the nastiness of the...
A question in light of my other post about trying tenofovir. Clinicians must follow the Hippocratic oath 'at first, do no harm' , but what's your...
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