Do you have any other information on these/this meeting, @dave30th? I understand if unable to share too.
If I’m hearing correctly (since we know NIH representation wasn’t in attendance at the HELP Hearing) this is the first public acknowledgement of a...
From Bernie today, talks about 3 min on LC and Moonshot (two part video embedded below): Mentions 3 things in particular: 1) HELP Hearing 2)...
@butter. This feels pretty personal when many of us are sacrificing every once of our health to try to move this forward.
I'm the Director for Minnesota ME/CFS Alliance & have volunteered with several of the national organizations since I got sick in 2017. Jaime is of...
@butter. do you think US advocacy groups aren’t trying..? Many of us pour everything we have in this space.
If this wasn't already stated, sharing now: 'The committee is accepting emailed feedback on the proposal at LongCovidComments@help.senate.gov...
The Long COVID Moonshot group is very impressive, just to share.
Mods feel free to move, but sharing here if this wasn't already shared. 3/25/24: 'A Discussion with Dr. Avindra Nath: Ted Burns Humanism Award...
@Janna Moen PhD - Apologies if you've already stated, but do you plan on sending any review or analysis to the authors (Walitt, Nath et al)? Would...
Quick shameless plug of appreciation to ME/CFS Clinic Minnesota & Dr. Ruby Tam's continued tireless efforts for helping this patient population...
Sharing this reply today. I asked Walitt if he could clarify his 'mismatch quote' in the NIH press release. "You asked Dr. Walitt to clarify what...
Appreciate alll this important work, @Arvo In terms of FOIA, someone else may have to undertake that request. Coordinating and collaborating on...
I don’t use the Perrin Technique nor subscribe to the notion that it’s helpful. Tam advised recommendations more in line with BHC (Abilify, LDN),...
Dr. Tam also trained with Bateman Horne Center & is an incredible ally in this field (testifying at the MN Senate last year for the legislation...
Post copied from US News, and some subsequent posts moved Sharing one of the lead stories on our evening news tonight in Minneapolis, MN. This is...
Sharing one of the lead stories on our evening news tonight in Minneapolis, MN. This is the third ME / LC feature this reporter and station has...
Thank you @andrewkq. I think I have to have a refined search to one person, the volume would be too large to ask for all communications with this...
FYI the person processing my FOIA claim sent me this today: 'My understanding based on your descriptions is that you are concerned about potential...
Separate names with a comma.
