You know my answer, but would be curious how he’d rebuttal if any ask him. His e-mail is avindra.nath@nih.gov Pretty sure he’s pretty over of my...
Giving visibility this message from Nath to another pwME today, who I don't think would mind that I'm sharing here since nothing is private here...
Someone affiliated with the study from the NIH messaged me today saying "We will be holding a research symposia in the next month or so where...
[just to quickly interject, I compiled media roundup of the NIH ME Intramural Study below - sharing for anyone browsing through this thread and...
Sharing in here if not already shared. Live Science: '''It took the rug right out from under my life': Milestone ME/CFS study begins to explain...
Appreciate spearheading this, @rvallee
Take a lap, buddy. 17 US patients, who are human beings, went through an awful lot and sacrificed their bodies / baselines in this study. Some of...
Thank you, @B_V
This report lead off the 5:30PM broadcast news tonight KSTP News Minneapolis - St. Paul "Patients, including from Minnesota, pack US Senate...
Sharing the recap from our local press. Minneapolis Star Tribune: "Follow up, funding critical on long COVID" "The entire Minnesota...
Also not sure if mentioned elsewhere or mods feel free to move, but there is a US. Senate Hearing on Long COVID next week, that will be...
Just wanted to quickly share from New York Amsterdam News: "The continuing fight for Long COVID and Myalgic Encephalomyelitis patients.” NY...
Just sharing from our local paper (Minneapolis Star Tribune) “23 for '23: The most-read opinions” (Number #12 on Most Read for 2023) "Frustrating...
Sharing KSTP's write-up: "No treatment, no cure: Patients await answers about debilitating disease related to long COVID" 'ME/CFS can be...
Hey all, This evening, on KSTP News (ABC Affiliate) in Minneapolis - St. Paul, the lead story on our evening news broadcast was a report centered...
Moved post [MEDIA]
Not sure if this was sarcasm @Fizzlou (and it very well could have been, so apologies if so), but for those that know more than me have stated...
I know understandably so that every thread is usually filled with jadedness & a very heavy dose of cynical analysis (I’m at fault I’m sure being...
This group has probably already seen, but sharing if not. Thread attached with some of Nath’s slides from yesterday. Thank you to the attendee...
...wouldn't they just announce that though? Versus building up anticipation from a community that is waiting on hope...
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