(mods, if there's a more applicable spot to share, feel free to move to)...
@B_V From a member on Phoenix Rising forum: “Well - I added lead researcher Paul Hwang to the email and he replied to me already! He thanked me...
Quickly leaving the template here, if others desire to send to NHLBI Director as well: Message Template: To: NHLBIinfo@nhlbi.nih.gov;...
Thanks for sharing @Jaybee00. That message inspired me, and I wrote to NHLBI Director too. Hoping others may follow suit as well. [ATTACH]
This feature is great, thank you for your efforts on this, @B_V!
Not trying to be nosy @B_V, I just wanted to make sure I didn't miss it! All the best.
[Mods feel free to move most applicable, but sharing as ME/LC advocates in Minnesota secured funding measures passed in state legislation last May...
@Jaybee00 Nath & Walitt were there, who led the NIH ME Intramural Study. Systrom was there too (ME Researcher). You probably already knew that...
Star Tribune: "Frustrating futility on long COVID" "So far, the National Institutes of Health's progress has left patient advocates and some...
Just sharing, @B_V Star Tribune: "Frustrating futility on long COVID" "So far, the National Institutes of Health's progress has left patient...
Thanks, @B_V! Looking forward to reading. I think my local press (Star Tribune in Minneapolis) is planning on publishing a piece next week on...
Hey @B_V! As August comes to a close here, was just wondering if WP is still slated to publish this soon, from what you know? Thanks for sharing...
Correct. I'll flag to the 2 CU PI's I've connected with on RECOVER.
From Dr. Whittmore at NINDS: "The recent publication from Dr. Hwang’s group at NIH is a collaboration with NINDS and Dr. Nath as part of the NIH...
Just trivial sleuthing again, but noticing that NIAID Director 'liked' this today and hopefully is following closely too with NHLBI/NINDS. [ATTACH]
Moved post Has this already been shared? Science: "A protein that disrupts cells’ energy centers may be a culprit in chronic fatigue syndrome"...
Moved post Apologies, if this has already been posted [MEDIA]
I attended one of the regional RECOVER Town Halls last night on the clinical trials. Sharing below if interested. Some more info embedded in the...
I sent the STAT News reporting to her yesterday, about NIH's underwhelming RECOVER trials. She replied back "Thank you for the outreach. Really...
Obviously very very trivial again but I did see that Dr. Marrazzo (new NIAID Director) “liked” this below yesterday on Twitter from Madeline...
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