Yes, I agree, having PEM as an exclusionary symptom can lead to a lot of false negatives. Me for example, I never had PEM for the first 13 years...
Yea I get this kind of PEM a lot, probably more often than physical PEM, good that they are starting to look into it.
I don't agree with that. My illness started with a viral infection. For the first 12 years or so I did not have (noticeable) PEM. I had plenty of...
Yes, it is infuriating. Post viral fatigue isn't rare indeed. Being fatigued and ill for several months after a virus is very common and still...
Considering that more invasive treatments tend to produce a stronger placebo effect, it is indeed very likely that it is placebo. Then again who...
This theory could explain why many people seem to get permanently worse after a crash. Namely blood barrier gets compromised temporarily (stress,...
I can relate to that. I've had 3 major relapses. Each one lasted 1 to 3 months, then I gradually got better. However after each relapse I...
Same here. Gastro infection with vomiting, then for several years low grade nausea that felt very similar. The nausea became less severe and less...
Wow, some of their symptom descriptions match me perfectly! The similarities are astounding. A few examples: I've had this for years. I get...
DOMS's is one of my symptoms, it feels exactly the same as the DOM's I get after weight training. When it happens I wake up with my legs feeling...
We don't know if all pathogens can cause ME/CFS. It might well be possible that infection with certain pathogens never leads to ME/CFS. Also it is...
Because an infection might divert the immune system from attacking the body to attacking the virus.
Despite the negative Rituximab trial, I think we should not discount the possibility that ME is an (auto)immune condition. This study and the fact...
If mTOR is used as a backup energy system, does that mean that taking mTOR inhibitors (caffeine, green tea, curcumin, etc.) would be a bad idea?...
Yes, fasting is great for cleaning your body, reducing inflammation and increasing longevity. I try to do several 2-3 day fasts each year. That...
I really think they are on to something. Their main idea is that Complex V inefficiency is the root cause of ME/CFS. I don't understand exactly...
Wow, if true, this is groundbreaking.
If someone suffers from multiple neurological symptoms and PEM, then it is highly unlikely that everything is to blame on sleep apnea. On the...
That's quite interesting. Did people become ill due to the exosomes themselves or because they were contaminated with something? If certain...
They should do research into the timing of depression. For me at least I've noticed a very strong and consistent pattern. It seems like whatever...
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