To fellow ME/CFS sufferers in Hungary. I'm so sorry that we're all having to cope with this awful disease. But I have more optimism now than at...
Thirty five years ago one of my closest friends caught glandular fever while at university and did not recover quickly. The advice from her GP...
I'm afraid I have no direct experience to offer. But when I was unable to eat solids for an extended period after bowel surgery someone suggested...
This is true for me too. My sleep is always prone to disruption but only during a 'flare up' or a 'relapse' following over-exertion (ie PEM) am I...
Just to say that I've had similar issues since before my ME started. I've been prescribed prochlorperazine in the past, which has helped a bit. I...
Thanks so much for responding @Samuel. I will take a look back at your old post and at the paper you mention (when I have available attention to...
Many thanks @NelliePledge. I'll take a look at both of those.
I'm engaged on a piece of self-advocacy that has reached the point where I must explain how serious the effects of cognitive dysfunction can be in...
My kind neighbour got wind of the fact I was having trouble getting my booster at home and offered to drive me to a local health centre where it...
Many thanks @ukxmrv
Apologies @ukxmrv . My brain is always slow. Did you mean CCG when you said CNCC groups? Or is there another organisation I should be looking at?
Thank you @ukxmrv . I didn't know about the CNCC group websites. I will take a look.
Thank you @InitialConditions and @Trish My GP's surgery say they are currently fully booked for making home visits to deliver boosters but will...
Does anyone know if there's any other route to getting a home booster vaccine in the UK other than your GP? There seems to be no mechanism to book...
Many thanks @Kalliope I will pass that on. I like their 'Cautious Tortoise' recovery programme.
Does anyone know of good resources to help a mother whose child has recently been diagnosed with Long Covid in the UK?
Thank you @Joh. It was clearly a longterm, meticulously planned and well executed operation. It's useful to have the details.
Oh my goodness @Joh ! What a great achievement for all involved.
That is very helpful @Joh . Thank you. That sounds like a highly effective, co-ordinated strategy. Hopefully we can learn from it. Do you know if...
Signed. I'm not on 'social media' but have sent it to five sympathetic friends by email, explaining briefly why it matters. I'm not good at...
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