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  1. Florence
    Post

    Do postviral syndromes in children have a tendency to appear with a delay?

    I'm afraid I haven't been able to read all of the above posts so forgive me if anything I write is repetitive or irrelevant. I wanted to note the...
    Post by: Florence, Nov 6, 2021 in forum: Other health news and research
  2. Florence
    Post

    Austria: Petition: ME / CFS: Recognition, Medical Care and Protection of the Affected, and Research Funding, closes 22 Nov 2021

    Done. That was very easy!
    Post by: Florence, Nov 5, 2021 in forum: Petitions
  3. Florence
    Post

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    Phew! Done it! I'd been a bit scared of a complex signing process in German (which I do not speak). But following the instructions in English...
    Post by: Florence, Oct 25, 2021 in forum: Petitions
  4. Florence
    Post

    United Kingdom: ME Association governance issues

    I know much less about the structure of the MEA than others here, but I'd agree with Trish's analysis and concerns above.
    Post by: Florence, Oct 9, 2021 in forum: Organisations relevant to ME/CFS and Long Covid
  5. Florence
    Post

    Science for ME page on MEpedia

    I just wanted to second this opinion from Michelle. I'm new here, and barring major treatment breakthroughs, my cognitive dysfunction means I will...
    Post by: Florence, Aug 5, 2021 in forum: MEpedia
  6. Florence
    Post

    Covid-19 vaccination experiences

    Thank you. Not sure how I missed that thread!
    Post by: Florence, Jul 15, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  7. Florence
    Post

    Covid-19 vaccination experiences

    Hi. Where would be the best place for me to talk about experiences of having suspected Covid and Long Covid as a pwme? I am double-vaxxed - but...
    Post by: Florence, Jul 15, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  8. Florence
    Post

    DecodeME - UK ME/CFS DNA study underway

    I very much enjoyed the podcast. I only listened to the first sixteen minutes. Thanks so much to everyone who is working on the DecodeME study....
    Post by: Florence, Jun 17, 2021 in forum: ME/CFS research news
  9. Florence
    Post

    The need for a standardized conceptual term to describe invalidation of patient symptoms, 2021, Bontempo

    I'd be tempted to drop 'patient' from 'invalidation of patient symptoms' and say simply 'invalidation of symptoms' or, more colloquially, 'failure...
    Post by: Florence, Jun 15, 2021 in forum: Research methodology news and research
  10. Florence
    Post

    Covid-19 vaccination experiences

    I had my second dose of AZ three days ago. After my first dose I enjoyed a few days of increased energy and mental clarity - as some others have...
    Post by: Florence, Jun 11, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  11. Florence
    Post

    New Video: Long Covid, Post Viral Fatigue Syndrome and ME/CFS

    What a great video @Adam pwme . Thank you for making it.
    Post by: Florence, May 21, 2021 in forum: Resources
  12. Florence
    Post

    Good nutrition when energy is very low

    I'm fortunate in that I am usually well enough to cook a simple meal. But when I'm not I find the following useful (they're all things you can...
    Post by: Florence, May 20, 2021 in forum: Home adaptations, mobility and personal care
  13. Florence
    Post

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    This isn't original, but when I want to describe my energy problems to a 'lay' person I say it feels like having the flu all the time. In other...
    Post by: Florence, May 12, 2021 in forum: Post-Exertional malaise and fatigue
  14. Florence
    Post

    UK - NHS England online tool and clinics for long Covid.

    Just to echo what Kitty is saying here. The most valuable thing I could have had at the time I got sick, after a flu-like virus, 18 years ago,...
    Post by: Florence, May 6, 2021 in forum: Long Covid news
  15. Florence
    Post

    Covid-19 vaccination experiences

    I experienced a week-long surge of energy and mental focus after my first AZ jab. I almost felt like I did prior to my suspected Covid infection...
    Post by: Florence, Apr 2, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  16. Florence
    Post

    Covid-19 vaccination experiences

    It's now five days since my first AZ jab and I have noticed increased energy and mental focus since having the jab. I had experienced a severe...
    Post by: Florence, Mar 27, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  17. Florence
    Post

    Covid-19 vaccination experiences

    I had my first AZ vaccine dose twenty six hours ago. A nurse came from my GP's surgery to give it as I've been housebound since a...
    Post by: Florence, Mar 23, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  18. Florence
    Post

    Explanation for excessive generalized edema?

    Hi Wyva Just to say I experienced a sudden overall 'increase in volume' at the immediate onset of my ME which followed a virus - more than...
    Post by: Florence, Mar 12, 2021 in forum: General and other signs and symptoms
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