London criteria (PEM is a symptom):...
This is probably off-topic, but as I happen to be here for a nice change, I thought I would ask: Would it be worthwhile doing a similar study to...
Morning I placed this note on our website and social media (or variants thereof) with respect to the latest The ME Show with Dr Sarah Myhill:...
I think that we sometimes forget - or it gets lost in all the other arguments - that people diagnosed with ME/CFS are largely I would suggest...
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Next week sees Dr Sarah Myhill, and then we have the Countess of Mar, followed by Dr Nina Muirhead...
Morning, The article is based on a podcast interview. It would seem from the podcast that Duerden couldn't get a diagnosis on the NHS and turned...
Morning-ish Not so far as I know, no. Bit of background noise occasionally on the recent podcast episode but I thought it was very good to...
Good Afternoon, This is incorrect information. We actually had an email from Jane Colby (Tymes Trust) who had erroneously been informed we (the...
Ms. Monaghan seemed to think it would be at 2.00pm on Thursday 24th, so just after lunch. Should be on parliamentary TV and might even be on the...
Hi Just wanted to add that the 2012 survey took us THREE YEARS to collate and then produce a report. And we had hoped the report would be one of...
We have been advised this morning that there have been over 1,000 surveys completed which is pretty amazing as it was only launched last Friday....
Graded or grading is another word/term that is often interpreted differently I think. My local ME/CFS clinic defined it as 'grading' the...
I personally think it would help if NICE updated or better defined what it meant by: GET (e.g. aerobic which is arguably what is hard to...
Morning, We're just waiting on the university to release the final survey and then it will be promoted across charity websites and social media....
Hi John, I didn't come up with the answers, but as someone with M.E. I do take a range of medications to help with symptoms e.g. gabapentin,...
Morning, You should see promotion of the survey from Forward ME later today or tomorrow. All member charities will promote it on their websites...
Greetings, I canne work the multi-quote thingimebob, but in answer perhaps to those who were talking about the inadequacies of a GP making a good...
I found the graphs that showed people had been steadily/dramatically increasing the number of GP consultations, tests, prescriptions and referrals...
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