I’m not well enough to read the full thread, so sorry if this has been resolved. I’m also thinking about this issue as my Wheelchair88 seems to be...
I had Pfizer yesterday afternoon so this is my initial feedback: positives: it hasn’t caused an immediate ME flare, my viral/inflammation...
@Ravn I do have a GP appointment later today to discuss if I need to stop fludrocortisone before having the vaccine, but I have no confidence that...
That doctor will be retired now or I would have asked him. He’s the only immunologist I’ve seen with a ME interest - after that it switched over...
I was getting ready to go to the vaccine drop in, then had allergies to a newly washed jumper as I put it on so I chickened out for today. Think...
I’m considering having my first Pfizer later today at a drop in. How did other people make the decision if you were well enough on a given day? Do...
@TiredSam what I mean is I was explaining my perception. Only I can know my perception. I accept that other people have different perceptions. How...
2 day VO2 max? Consistently increased steps and general activity over time? I was stating my perception so I’m not sure how you can know the...
I think this would be interesting to do Ron’s test even though there’s not a direct before comparison. It would be curious if you still show a...
From Wikipedia
I don’t think this explains your one sided weakness but as an aside re dopamine, trawling through my whole genome I’m homozygous for a pathogenic...
@Jenny you sound quite similar to me. I’ve been 95% well before too, not entirely symptom free but able to lead a normal lifestyle. My steps down...
I got the impression with @Jenny she knew what was going on and wanted to document before the virus that there was brief remission? It sounds less...
When I have weakness or paralysis it’s symmetrical. It can be localised, but it would be both legs or both arms. Things people mentioned to me...
Kirke 2017 was what I was going to suggest Karen! A graph from your paper is often what we use for #MEAction stuff.
Yes reassuring because rituximab could have been instantly dropped without understanding the discrepancy between results.
Also previously discussed here (or the other place) most (all?) of us who’ve had genetic testing seem to have a tendency to fast twitch rather...
Firstly a personal anecdote is my PE teacher had one of these devices, I was the strongest in my class on this HGS test (pre ME). It was useful...
Supradyn is mentioned specifically as well as other general things. I wonder why? [MEDIA] It’s from this study...
I’ve not heard of a large undiagnosed Parkinson’s subgroup in ME. Is this nonsense? The reference is in Russian (which doesn’t mean it’s nonsense,...
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