It looks like an interesting book, available on Amazon for £8.99 [MEDIA]
Peter White said about not doing tilt table test, though gave the reason it was too demanding for us...
BPS is a way of seeing health/illness/disability. It is a general model. So as a comparison you have the Social Model of Disability and the...
I’ve written a blog post about my attempt to understand https://tipsforme.wordpress.com/2018/10/13/understanding-the-ido-metabolic-trap-hypothesis
@Trish so how does Rule 5 fit with a thread like this? I wouldn’t interpret sharing experiences of supplements as medical advice (because anyone...
It is slightly puzzling but Psychology can be more like hard science than people expect. Eg neuro lectures can be difficult, you learn the anatomy...
@Invisible Woman I’ve had my whole genome sequenced and it looks like I’ve been dealt a bad hand genetically in terms of tendency to not absorb...
Yes I think this is a very real issue. Though of course we don’t know if we do have the same issue they have! In my case d-ribose might be...
Supplements improve how I feel. I feel like I’m powered by d-ribose (3 teaspoons spread out over the day). I’m prepared to accept this could be...
This could be useful for evidencing Disability. Laziness or perfectionism or any of the other contradictory and unhelpful stereotypes about ME...
@Binkie4 car journeys trigger really bad PEM for me too (I assume as a sensory overload type of thing), but was a plane better? Train journeys...
I get what you mean by this phrase. My brain doesn’t feel on good form this morning but I wonder if there’s some connection between Younger’s...
My OH got a really bad flu too despite having the jab. We call it Mutant Flu :android: in family folklore partly because it had mutated from the...
You must have so much resilience. I’m very fed up with the 20 year stretch I’ve done. It is infuriating that many researchers seem to miss what...
To me ME doesn’t feel like it is well described as persistent fatigue, this isn’t a proxy. Or perhaps I just don’t have ME?! Is he talking about...
:rofl: Loving this! I think it is a theory I should tell myself several times a day. I did find myself googling stuff Ron mentioned as if I could...
The trouble is asthma is a condition where plenty of people believe it’s influenced by stress and hypochondria. We need one where people don’t...
Yes because there’s a fashion for Evidence Based Medicine so if you want to do something you need to be able to point to significant results in a...
@JaimeS I can’t remember nausea with talking. I get it as like a warning with reading. I wouldn’t describe it as PEM itself it’s more like a...
I can’t remember but it sounds like we (people at #MEAction) got a very similar response @Adrian The committee we wrote to is Frenchay based...
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