Progress might be slow if they’re following the collective evolution process ;)
@Dr Carrot did they convincingly improve exactly at the time of LP? There’s two confusing aspects: genuine/classic ME can fluctuate wildly and...
Does the nerve conduction test pick up SFPN? I had that with the EMG and the nerve bit was fine for me (muscle abnormal but not specific enough to...
My ME dyslexia is worse than my general cognitive ability so I’m struggling to follow the twitter threads, and can’t pretend to have even made an...
*We definitely don’t have a strategy to discourage people from donating to research*. This is slightly out of context from a discussion that...
So also sitting upright? Although I can be up, as in not in bed I don’t tolerate sitting upright feet on floor (at a dinner table type sitting)...
May need to tread carefully around UK ME politics while the NICE guidelines are being reviewed? They are making noises about wanting to hear...
I find vets really impressive. They cover all the different species and all aspects of medicine and surgery. Also much easier to get an...
Now nearly 30,000 views :thumbup: I didn’t prompt it explicitly actually but I have contact with Jessica on the various social media, and I...
I have some interesting stuff to add to this thread but too foggy right now.
Is this thread still public? It seems generally sensitive.
The most recent Chronic Illness Inclusion Project post sparked discussion on social media as well as the site itself:...
@strategist thanks I’d actually tried that before and was asked to pay by bitcoin. It works now
Has anyone got access to the full paper? Chronic fatigue syndrome (CFS), commonly known as myalgic encephalomyelitis (ME), is a debilitating...
I found some AMPK activators for a blog post 3 years ago [MEDIA] I’ve been thinking about my very fluctuating ME journey over the last 20 years....
@Invisible Woman I haven’t tried yet but it seems like you can get the private prescription here...
[IMG] Something I found in my googling is this NHS cost comparison of different drugs. It’s a roundabout way to see if drugs are approved and...
@Evergreen thanks. From that Natelson guide So they have fewer side effects :thumbup:
Yes it might have been additives rather than the magnesium itself. Epsom salt baths have helped in the past (though I’m cautious about hot baths...
LDN I’m interested in but I’m suspicious of the evangelical zeal around it. Over enthusiasm rings alarm bells with me, though of course if it...
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