I’m not clear what it is ok to say about this, but UK ME charities were already having these discussions before yesterday. There should be another...
For some reason the link I initially added doesn’t work. Try...
I had this in my inbox from ncbi no idea if this is important or credible. My brain won’t allow me to read the full article but the dots on the...
Increased Endogenous Sulfur Dioxide Involved in the Pathogenesis of Postural Tachycardia Syndrome in Children: A Case‐Control Study Hong‐Xia Li1,...
@arewenearlythereyet our experience sounds pretty similar
I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in...
@Liv aka Mrs Sowester @erin thanks :blush: The Lindy Bop dress I’m wearing in the video I got for £3 on eBay and it’s the sort of dress you can...
I made my first YouTube tutorial video. That used up a lot of energy! I did it mainly to learn about video editing but also people were asking me...
An interesting aspect though is when increased awareness of sepsis was in the news a number of us commented that it would be hard to tell apart...
Is Science for ME enough of an ‘organisation’ to actually become a patient voice stakeholder? There’s going to be a NICE workshop next week, you...
No, so I’ve submitted the form again and had an email confirmation now :)
I fear we have to register as stakeholders for each bit. ME Action Network has dropped off the list again too :(
The global petition is still open and the general campaign hasn’t finished (though it’s perhaps a bit sleepy ;)) See @stopGETteam on twitter...
It is definitely variable, not everyone with PP gets this, but some people with PP get something very PEM like with a delayed response to...
That’s good. Perhaps the terminology changed, Professor Google thought the studies dried up about a decade ago when I asked. Probably best to go...
There’s a list of papers here http://me-ireland.com/scientific/channel.htm Out of cognitive energy for now...
Not quite sure how we deal with the dual conversation issue? Over there they’ve got to a hint at a link with the Dauer hypothesis...
Ah I’ve spotted The Other Forum discussing this topic at the moment too...
Yes but often simply due to lack of funding for decent research to test them :( The overlap of episodes of weakness, brainfog, sometimes symptoms...
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