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  1. hellytheelephant
    Post

    Reality of ME. How would you get this across (briefly) using words or graphics?

    I always describe myself as like a very old mobile phone: My batteries run down quickly and take ages to recharge.
    Post by: hellytheelephant, Feb 4, 2021 in forum: General Advocacy Discussions
  2. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    Thanks @Sean- i love the sound! Particularly the CREEP, with slightly amended lyrics.
    Post by: hellytheelephant, Jul 4, 2020 in forum: Relationships and coping
  3. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    Merged thread Five good surprises in lockdown My latest Blog-from-the- bed features new sources of creativity and inspiration, as well as lavish...
    Post by: hellytheelephant, Jul 3, 2020 in forum: Relationships and coping
  4. hellytheelephant
    Post

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    One thing we can be certain of- that pages won't be getting any 'LIKES'!
    Post by: hellytheelephant, Jun 3, 2020 in forum: Work, Finances and Disability Insurance
  5. hellytheelephant
    Post

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    So sorry to hear that. I have the suspicion that refusing applicants, and filling the assessment with lies is standard. I was awarded nil on my...
    Post by: hellytheelephant, Jun 1, 2020 in forum: Work, Finances and Disability Insurance
  6. hellytheelephant
    Thread

    ELEPHANT IN CAPTIVITY 2: COLOURING IN(SIDE)

    My latest Blog features ways to get your creativity going, and bring more colour into your life during lockdown:[ATTACH]...
    Thread by: hellytheelephant, Apr 25, 2020, 0 replies, in forum: Home adaptations, mobility and personal care
  7. hellytheelephant
    Post

    "Soap"

    I can recommend https://www.friendlysoap.co.uk i have the tea tree and lavender for body and hair.
    Post by: hellytheelephant, Apr 4, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  8. hellytheelephant
    Post

    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    My update:i think the form has been tightened up since i filled it in. i have not received a letter from the government saying i am in a most...
    Post by: hellytheelephant, Apr 4, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  9. hellytheelephant
    Post

    Miranda Hart - British comedian

    I think she spoke with such insight about ME then it would not be surprising if she has first hand knowledge- i hope not for her sake... She is a...
    Post by: hellytheelephant, Mar 31, 2020 in forum: General ME/CFS news
  10. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    Merged thread ELEPHANT IN CAPTIVITY: 1 LOCKDOWN ROUNTINE My latest Blog is about surviving lockdown, and is (hopefully) full of hints for those...
    Post by: hellytheelephant, Mar 28, 2020 in forum: Relationships and coping
  11. hellytheelephant
    Thread

    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    https://www.gov.uk/coronavirus-extremely-vulnerable
    Thread by: hellytheelephant, Mar 27, 2020, 140 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  12. hellytheelephant
    Post

    The Guardian: DWP accused of offering disabled people 'take it or leave it' benefits

    There is an implied 'offer' whether it is articulated or not, which is that if you appeal you may lose some of what they have awarded you. I can...
    Post by: hellytheelephant, Mar 3, 2020 in forum: Work, Finances and Disability Insurance
  13. hellytheelephant
    Post

    UK: Universal credit could 'steamroll vulnerable into poverty'

    It has already done so- witness the huge increase in demand for food bank help, child poverty and period poverty.
    Post by: hellytheelephant, Feb 12, 2020 in forum: General disability topics and advocacy
  14. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    Merged thread Gratefulness and Dancing as if your body can This CHRONIC ELEPHANT BLOG talks about the importance of Gratitude, ( even when life...
    Post by: hellytheelephant, Feb 9, 2020 in forum: Relationships and coping
  15. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    Merged thread DATING DISASTERS AND 5 DATES WITH MYSELF Hi Here is my latest...
    Post by: hellytheelephant, Feb 9, 2020 in forum: Relationships and coping
  16. hellytheelephant
    Post

    Who's Who?

    This is such a good idea!
    Post by: hellytheelephant, Jan 10, 2020 in forum: General ME/CFS news
  17. hellytheelephant
    Post

    Junk food 'should be labelled with how long you need to exercise to burn it off'

    So true. There are so many complex reasons for obesity and demonising junk foods is not the answer. I don't believe that there is a set amount of...
    Post by: hellytheelephant, Dec 16, 2019 in forum: Other health news and research
  18. hellytheelephant
    Post

    Electrolytes

    Hi @Mij - I just wondered if you are still taking this electrolyte powder and getting increased benefit?:hug:
    Post by: hellytheelephant, Dec 9, 2019 in forum: Other treatments
  19. hellytheelephant
    Post

    Is sex worth the pain? Willingness to engage in sexual activity among partnered women with fibromyalgia, 2017, Gullickson et al

    It is something that doesn't get talked about enough. I have thought about doing a Blog about it, but am put off by the thought of friends and...
    Post by: hellytheelephant, Dec 9, 2019 in forum: 'Conditions related to ME/CFS' news and research
  20. hellytheelephant
    Post

    Is sex worth the pain? Willingness to engage in sexual activity among partnered women with fibromyalgia, 2017, Gullickson et al

    Thank you for the much needed lols @large donner !
    Post by: hellytheelephant, Dec 9, 2019 in forum: 'Conditions related to ME/CFS' news and research
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