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  1. hellytheelephant
    Post

    Pain in ME–what helps you and what can I do?

    Hi @lunarainbows firstly- poor you! It sounds like you have a particular sensitivity that makes your body's reaction to activity so extreme ( I...
    Post by: hellytheelephant, Nov 27, 2019 in forum: Post-Exertional malaise and fatigue
  2. hellytheelephant
    Post

    Electrolytes

    Do keep us posted @Mij - it will be interesting to see how you progress on it.
    Post by: hellytheelephant, Oct 13, 2019 in forum: Other treatments
  3. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    I took part in an online course teaching me pacing...and the instructor crashed halfway through. :banghead:Nuff said!
    Post by: hellytheelephant, Oct 12, 2019 in forum: Relationships and coping
  4. hellytheelephant
    Post

    The Chronic Elephant blog by hellytheelephant

    Merged thread Anarchy In The UK [ATTACH] Check out my latest Blog: Anarchy in the UK...or is it?!...
    Post by: hellytheelephant, Oct 9, 2019 in forum: Relationships and coping
  5. hellytheelephant
    Post

    Effect of pain on relationships...my personal take on Pedro Almodovar's condition

    That's really interesting: I didn't know he was a chronic pain sufferer. I can certainly relate to finding socialising exhausting- not that I do...
    Post by: hellytheelephant, Oct 5, 2019 in forum: Pain and Inflammation
  6. hellytheelephant
    Post

    ME/CFS services in the United Kingdom

    I find it hard to imagine anyone envying the situation in the Uk. In over 30 years of ME I have never been offered any actual treatment!
    Post by: hellytheelephant, Oct 2, 2019 in forum: UK clinics and doctors
  7. hellytheelephant
    Post

    ME/CFS services in the United Kingdom

    I totally agree. Personally I don't think going to a clinic will get you more brownie points with getting benefits. Agreed. I don't think whether...
    Post by: hellytheelephant, Oct 2, 2019 in forum: UK clinics and doctors
  8. hellytheelephant
    Thread

    ALTERNATIVE THERAPIES: THE GOOD, THE BAD AND THE WOO-WOO

    The Chronic Elephant Blog this week is about ALTERNATIVE THERAPIES....
    Thread by: hellytheelephant, Sep 26, 2019, 4 replies, in forum: Other treatments
  9. hellytheelephant
    Post

    Flower Arranging Helps Reduce Fibromyalgia Pain

    This is pretty much the approach I faced when after over a year of waiting, I finally got to our local Pain 'Management'- unbelievably stupid...
    Post by: hellytheelephant, Sep 17, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  10. hellytheelephant
    Post

    Flower Arranging Helps Reduce Fibromyalgia Pain

    I can confirm this: I haven't arranged any flowers today, and I feel like crap!:rolleyes:
    Post by: hellytheelephant, Sep 17, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  11. hellytheelephant
    Post

    Flower Arranging Helps Reduce Fibromyalgia Pain

    How ridiculous! Doing any enjoyable activity would temporarily distract from pain but you have to be well enough to do it in the first place. I...
    Post by: hellytheelephant, Sep 16, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  12. hellytheelephant
    Post

    Does anyone use Topical Capsaicin Cream?

    HI @Squeezy - I am in the same state as you very regularly. I use topical heat a lot- electric heat pad, hot water bottle, and heat pad you heat...
    Post by: hellytheelephant, Sep 11, 2019 in forum: Pain and Inflammation
  13. hellytheelephant
    Post

    BBC programme You and Yours: Are you dependent on prescribed painkillers?

    I have been on opiates for some years. There is a big difference between dependency and addiction, and it is not a black and white issue. I...
    Post by: hellytheelephant, Sep 11, 2019 in forum: Pain and Inflammation
  14. hellytheelephant
    Post

    UK: Petition to make recording PIP assessments mandatory

    I believe you are currently allowed to record but only on specifically agreed equipment.
    Post by: hellytheelephant, Sep 9, 2019 in forum: Work, Finances and Disability Insurance
  15. hellytheelephant
    Post

    Burping

    Ditto. If you have to lie down a lot, it really doesn't help.
    Post by: hellytheelephant, Sep 9, 2019 in forum: General and other signs and symptoms
  16. hellytheelephant
    Post

    NHS Clinic Referral - Is this sensible?

    Same goes for me except my assessor screwed me over and I had to go to appeal. I don't think it was anything to do with lack of evidence though....
    Post by: hellytheelephant, Sep 7, 2019 in forum: General clinical care
  17. hellytheelephant
    Post

    Poll on turmeric and curcumin

    I have used both for pain- both really unhelpful- vile tasting and didn't have any effect other than upsetting my stomach.
    Post by: hellytheelephant, Sep 6, 2019 in forum: Drug and supplement treatments
  18. hellytheelephant
    Post

    Unpleasant taste

    I don't know if you get bloating or burping, but I associate the bad taste with acid reflux from your stomach ( due to lying down).
    Post by: hellytheelephant, Sep 4, 2019 in forum: General and other signs and symptoms
  19. hellytheelephant
    Post

    Pain & CBD (Cannabidiol)?

    After using some cheap oil from a healthfood shop, I bought the most highly recommended oil from the web...and after several months I really don't...
    Post by: hellytheelephant, Sep 2, 2019 in forum: Other treatments
  20. hellytheelephant
    Post

    ME AND MY MOBILITY SCOOTER ( AKA PENELOPE PITSTOP)

    @alktipping - I have taken out all the red and the blue ( in the text). Let me know if the heavy type is a problem. many thanks for bringing this...
    Post by: hellytheelephant, Aug 31, 2019 in forum: Home adaptations, mobility and personal care
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