@alktipping - thank you for the feedback. I did put more colour in this one, but will tone it down. Is black the best option? Do please always...
Just to be clear- I am LIKING the person who posted this, not any of these garbage courses.
My latest CHRONIC ELEPHANT BLOG is about using a mobility scooter and other aids. It also links to an article I wrote on another blog about...
Merged thread 6 BOOKS THAT HAVE MADE IT EASIER TO LIVE WITH ME My latest Blog is about books about Chronic Health, that have been well thumbed...
Dear The Guardian FFS!!! Please stop writing unhelpful articles about health conditions! The last thing patients need is someone telling them that...
He presents bedrest as something we choose,( hoping it will cure us). Bedrest is not an option it is the ONLY option for so many of us. In the...
I really don't understand why this is the case. As a generally left leaning publication it champions the underdog. We are about as underdog as you...
@Milo as a fellow sufferer of non- ME related pain, the revelation that chronic pain causes significant distress, depression etc, just makes me...
Thank you @Russell Fleming - so much of what you write about chimed with me particularly the stress of trying to keep working when you are not...
I have been on GF for about 3 years prior to this, although I was never really sure if it made that much difference. This Gluten Challenge has...
Good to see you on here @PhysiosforME!
I've had a range of experiences with physios- from the terrible to the supportive and helpful. Really good that they are doing this.
To be fair, I don't think they have considered the impact of no-deal on anyone else either...but a good idea to have a discussion thread.
@Trish - I came off the gluten on the day of the blood test, and am back to what passes as my 'normal' self. I get the test results this week.
My latest Blog is about the horror of 6 weeks of eating Gluten in order to be able to have the coeliac blood test. I've called it SPECS, AND...
We will need an app just for ME to scope out willing 'pain control' participants. Considering how much we would be flared up after, perhaps we...
ME Maths: EXERCISE + REPETITION = A WORLD OF PAIN AND SYMPTOMS.... so...not so much!:rolleyes: If only it was that simple!! Imagine every 4 hours...
For me it is definitely variable. It usually gets bad for a time, then as long as I manage it, doesn't get bad again for a while. Heat can always...
Thank you @JemPD for all the info - that is really helpful. I also have the 'can't tolerate smells' when I am v flared up. I have already got...
Hi firstly- we are not talking cures here...just using an oil in my burner in place of a strong cup of tea when I am flagging. I tend to avoid...
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