Statements like this demonstrate that BACME still consider ME/CFS as primarily a reversible condition:
I'd not read their guide to severe M.E. before, but followed the ME Association's link to it. There is some pretty harmful advice contained in it...
The GP METRIC training states the following: It also states the following:
I had full Ed Psych cognitive testing as part of dyslexia assessment in both 1997 and 2009. The results showed the exact same 'spiky' pattern of...
They are starting to research this phenomenon in Covid-19: https://www.medrxiv.org/content/10.1101/2020.10.20.20215863v1
Just listening to the discussion on cognitive problems from Covid-19 on Times Radio. This may be relevant to other threads on the forum where...
My M.E. was far better understood by my GPs prior to the introduction of 2007 NHS guidelines (my original GP was able to recognise the ignorance...
As someone who has lived with this condition for almost 30 years I would have to disagree. There will be many patients given the diagnosis of...
I can foresee problems if the revised NICE guidelines continue to cite chronic fatigue as the core, defining symptom of 'ME/CFS', rather than PEM....
From this point of view, I am glad the 'Long Covid' is currently being taken as a physical problem and being recognised by the establishment as...
If the consultant who diagnosed me with CFS/ME/PVFS (he used all the terms in the consultation) in the presence of my (now ex) husband had spent...
Hmm... they make reference to 'physiological dysregulation'. Looking back to the content of the METRIC training for GPs, the content doesn't refer...
Precisely! There is absolutely no need to have any 'specialist' training for therapists to give 'supportive CBT' for patients suffering from...
Riverford are now back to offering a greater range of products, including a greater range of organic meats, eggs, milk, cheese, butter, yogurt,...
I think this highlights that PWME were concerned about the make up of the NICE review group for very rational reasons (the ability of certain...
This map seems to be able to show recent weekly new cases:...
A robust response will be needed because the MUS nightmare is happening in the NHS regardless of what the revised guidelines will say (or don't...
I wonder which research group this was? Additionally, why are Cochrane more concerned with 'research waste' than with the effects of poor and...
I feel like this too. I have never had a single hour where I have felt 'well' since I first had the symptoms of M.E. (mine also began in 1992). I...
Yes, I agree with @Graham that the 'spoon theory' gives a false impression of what PEM is as well. It's not about borrowing from tomorrow's...
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