I'm waiting until tomorrow to sign as I'm not up to composing a suitable comment to add today, but I want to do this. The quality of comments on...
The Green Paper states that when they brought in the WCA they predicted that only 300,000 working age claimants would meet the LCWRA criteria for...
It's worrying because the recent Green Paper is saying that some of the criteria are now irrelevant due to advances in assistive technology,...
If you are severe enough that you can't reliably mobilise with the aid of a manual wheelchair 50 metres then this would put you in the Limited...
I think these petitions are aimed at individuals, but certainly accept and welcome international participation where this affects them too. So...
In the UK, they say benefits are based on 'functional assessments' but then if you don't have a formal medical diagnosis they will assume you are...
I think after what the Royal Colleges have done any compromises that have been made in the final draft from a patient perspective could be...
The new one is more neutrally worded and I am presuming that MEAction was a stakeholder in the guidelines so will have seen the final version. I...
Yes, with even reduced symptoms I would be able to demonstrate a marked improvement in my ability to carry out named activities of daily living...
Maybe they want to tap the emotional angle? The accounts might be more aimed at parliamentary ministers or the media, the request doesn't say....
I was browsing the comments on the online petition (now well over 1500) and some of the comments are actually testimonials, so I would suggest...
Are any of the other 'patient charities' member organisations of BACME?
Yes, I understand. But I like to go to the original source first, so I can look at it as neutrally as possible to start with. I am aware that PWME...
Coming at this as someone who knows nothing about them, when I viewed their website my conclusion was that they appeared to be set up to give...
Are there actually any ME patient members of this organisation, as when I looked over their website all they seemed to offer patients is the...
So the clinic that Mike Beadsworth, one of the professionals who resigned from the guideline committee, now runs? Michael Beadsworth a consultant...
And the IAPT outcome measure are highly misleading, so I'd anticipate any ME/CFS patient receiving treatment via this route is going to be deemed...
Did the Liverpool clinic respond? I suspect he is referring to the clinic he used to run. EDIT: I meant the clinic Allister Miller used to run, as...
Yes, an excellent well balanced article. Apt that is is published today.
Yes (you are correct). Because there are no services for patients with severe ME/CFS in the UK, most CFS clinics state they only accept mild and...
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