Great minds think alike....
Unfortunately, this is not the case in many of the clinics. Few have a medical doctor as part of the team, so any diagnosis given would be from a...
I think we (patients) should be pushing the main UK ME charities to take this issue up with BACME once the final NICE guidelines are published.
A very timely piece and worth reading as background to the recent government Green Paper on out of work and disability benefits. The below piece...
It would be a considerable saving for me as I have to pay £38 a month for the £15 36 Mb package (guaranteed to be about 27 Mb, the same as I get...
Presumably there is no BT fibre broadband to your flat then. In my area BT are the only company offering fibre broadband lines. When I went with...
I do wonder how many people are given a diagnosis of ME/CFS who are really in the phase of a post viral fatigue syndrome, i.e. a condition that is...
I may get my daughter to phone for me. I moved from BT years ago due to the difficulties and hours spent on the non UK customer helpline (even my...
I tried this a few weeks ago using the online application method and I kept getting a message at the end that there was a technical error and to...
I think some NHS services seem to offer the option for private treatments, in the same way that private companies can offer certain treatments on...
One of the most serious problems with even those clinics that feel they are trying to be helpful to ME/CFS patients is that they don't take...
I just looked up the Yorkshire Fatigue Clinic. I was shocked that they encourage patients to sign themselves and their carers up to an initial...
I also think this may be why we didn't see more resignations from the committee - there is still room for the CFS (now more CF orientated) clinics...
I was thinking about this too, really since the draft guidelines were published. I think S4ME picked up on this, but I can't remember what our...
Yes. When I read their brochure of treatments on offer, it seems they use the word 'integrated' for 'alternative'.... Edit: Or being more...
Doesn't this mean the onus will be on GPs to make the ME/CFS diagnosis? Wasn't it quoted in the past that about 40% of those who were referred to...
Further info on SLAM: https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/about/index I will be particularly interested to see how Kings deal...
Most of the NHS 'CFS/ME' services just seem to state that they 'follow NICE evidence based treatments and/or guidelines'. It seems that it is the...
But they have the research to back it up....:rolleyes: https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/cfs-me-research/ It...
They set up the new 'Chronic Fatigue' service by merging with the existing pain clinic in 2018 apparently. But the new service does include...
Separate names with a comma.
