I guess logically, it wouldn't. If a treatment shouldn't be used because it doesn't work and isn't cost effective, there's no point expending...
Ugh! The trouble with these function tools is that they never begin by asking what day you're on. Broadly speaking, I have four types of days:...
I have more of a problem with the name than the underlying concept. Even assuming they've understood and applied the test appropriately (and I...
The same the way they set up the test of people's ability to speak Polish for 20 minutes. They didn't even entertain the idea, because it would...
Very true. But out there in the normal world, you often meet with the same team (consultant or registrar) for extended periods, meaning you get...
If some of the questions are not asked, or not regarded as important, in other diseases of energy limitation, would that be part of the reason for...
Don't think he'll be mistaken for someone who knows anything about anything, TBH.
Good points. I suspect many of us do our best to escape the culture by not participating in these clinics once we've been diagnosed, learned the...
This is key. But I'd still like to know who the forms are for. Most pwME are managed by GPs, as almost no one in Britain seems to have an ME...
And is anyone going to do it? I've never had an assessment, and nobody monitors me the way the rheumatology and asthma clinics do.
Patients will only be able to give useful answers if the questions are related to their real lives. They can't compare themselves with someone...
Apart from the use of CFS, I think it's rather good. I'd change "extreme physical and mental tiredness" to "mental and physical exhaustion" and...
I think I have a slightly different understanding. During a sustained activity I'll experience rapid muscle fatiguability, pain and OI; if I keep...
Not in the slightest. I feel like I'm wearing a lead suit, have the 'flu, am wearing something I'm allergic to, am developing cystitis, and have...
That, and protecting the herd from infection, perhaps?
Not entirely, no. I think this is saying the person either can't complete the task, or abandons it because completing it isn't worth the...
Just wanted to say that this is so much more interesting than the publication!
People with co-morbidities might be excluded from some trials because they have diseases with overlapping symptoms, so it's not possible to say...
"I need to publish something, and I've already done the cranial massage, the electronic detox, and the happy app. Crystals, maybe? Oh, I know –...
He was probably mirroring the sort of language he hears from patients, as it was for a general TV audience. He might phrase things differently...
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