No, they need robust evidence that established rehabilitation practice works in pwME before they can justify using it.
I faced some of that too. Except after the first trial (antidepressants—bloody awful), I decided I'd accept the prescriptions for the reasons you...
Every time I read through a thread like this, it makes me think the only rational thing to do is call for a boycott of these clinics. :confused:...
Such as walking out and refusing to listen or participate any further? Such as...well, I don't need to quote the paragraph in question again.
I viewed it from a needs point of view, which is how it was presented to me when a care plan was proffered. Mine was completely blank apart from...
I'm an incurable optimist, so I take the word to mean agreed by the provider. They are the ones giving the care, and it should work as a broad...
As I understand it, at least some of the proposed benefits are longer term. They're more about reducing the kind of risks that can begin to...
I find it shocking. By definition, people who experience PEM are already exceeding their activity capacity at times. The suggestion they should...
Yes, exactly. I too am a fan of the good work he's done, but because people will assume he okayed this, it may work to undermine his credibility.
Yes, that's why I read it when I saw it online yesterday. I realise he has a personal investment in the topic, but it seems at odds with the...
Oh, I agree. I'm just trying to second guess the thinking, and the idea of producing something focused on patients' needs and realities might have...
I can see an argument that the clinics may be expected by the NHS to develop these tools, and if they do, the odds on them doing it really badly...
I wonder why it's particularly difficult for psychologists, though? In other areas of medicine, any number of long-established practices have...
Broadly, there seem to be two problems: The MEA doesn't appear to accept the potential for harm if this tool goes into use as it is. The MEA...
He may not have been entirely responsible. If someone makes an application to the fund, presumably there is a process they have to follow; if it's...
For ME, and used in this interventional way, it does sound...ugh. The concept itself can be useful; it's sometimes used to describe the process...
Well spotted!
Transcript looks great, thanks @dave30th. It's great to have this as well as the video to share—some people prefer one form over another, even...
Yup. Risk assessment for a nighttime wildlife survey: It'll be dark, you might trip over something. There's a lake, you might fall in. If you...
One of my worries is that it's actually going to end up being used for trials, when at the outset it was presented as not for use in trials.
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