Thank you @Jonathan Edwards.
https://forums.phoenixrising.me/threads/post-infectious-cervical-instability-variants-of-the-grisel-syndrome-a-link-to-post-infectious-cci.76494/...
https://forums.phoenixrising.me/threads/panel-and-q-a-after-unrest-at-hampshire-college-feb-2019.76446/ There is a thread on Phoenix Rising where...
@Jonathan Edwards I think I fit into both your groups 2 and 3 of people who may have EDS but with symptoms of ME. I have mitral valve prolapse...
Just thinking and there may be an obvious answer that escapes me. Presumably the 3 surgeons who are reported to be most competent at this...
I remember the week in March when I was in Venice celebrating our 50th anniversary, spending all the time I was in bed reading the Rod Liddle...
Thanks for the good wishes @Alvin. Your description of feeling like being on a rollercoaster or affected by centrifugal force was just how I felt....
Question from @strategist about travelling by car.#125 Thanks @Jeff_w and @JenB and @Mattie for sharing so much I posted yesterday about the...
Thanks @NelliePledge If I had been pushing for investigations like the upright MRI with the right sort of flexion images, I don’t think he would...
Or saline?
I brought this up with my GP a few months ago. I did this because of 2 things 1) I developed a new symptom last summer- a severe worsening of...
@feeb Just to let you know that there is a fb group “ Pacing with a hr monitor” that is very helpful. The files are useful, there are some very...
Thank you for that @perchance dreamer. If I can’t handle the dissolved LDN, I will ask about the transdermal variety. It may be metabolised in a...
Maybe it’s the absorption through the skin. Mine is a tablet from Dicksons which has to be dissolved using a syringe. Do you know what your...
Thanks @Daisybell .Glad you have had some benefit. I have the frustrating feeling that some benefit might be around the corner but I can’t get...
Hi everyone @Dechi Am really struggling so think I need to stop for a while. Stool samples showed no infections and 2 days with no LDN brought...
I fully agree with the argument that children should not be encouraged to keep secret anything that happened in a LP training session, but even...
Do we know that the adults who had access to the children were properly screened? Is this described anywhere? When I did work involving access to...
Thank you @Chris Ponting. I have put it on my Facebook page. I post a lot about ME there but I have asked that if friends read/ listen to only one...
@Dechi Hope you improve soon. Are you connecting your gastric problems with the LDN? I don’t know what to make of it but it’s calming down and...
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