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  1. Binkie4
    Post

    Ampligen for ME/CFS

    Does one vial equate to one treatment? And each patient needs 2-3 per week? If i’ve made the right assumptions, 325 vials won’t treat many...
    Post by: Binkie4, Jan 2, 2019 in forum: ME/CFS research news
  2. Binkie4
    Post

    Signs of Hypoxia - anyone had this?

    I am unsure what to answer. I have never had bluish lips or nail beds but my SATs are lower than ideal. I feel much better on the couple of...
    Post by: Binkie4, Dec 31, 2018 in forum: General and other signs and symptoms
  3. Binkie4
    Post

    Public Research into childhood leukaemia- double hit theory of prebirth (but not inherited) problem and later inflammatory illness.

    Thanks @Fungi. I was interested in this double hit theory as it related to ME too. Unfortunately brain is more crashed than usual but I think...
    Post by: Binkie4, Dec 31, 2018 in forum: Other health news and research
  4. Binkie4
    Thread

    Public Research into childhood leukaemia- double hit theory of prebirth (but not inherited) problem and later inflammatory illness.

    https://www.theguardian.com/science/2018/dec/30/children-leukaemia-mel-greaves-microbes-protection-against-disease Posted this because of the...
    Thread by: Binkie4, Dec 30, 2018, 3 replies, in forum: Other health news and research
  5. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Thanks @JohnTheJack. Do you, or anyone else, have a reference? It would be interesting to know his view now, expressed clearly.
    Post by: Binkie4, Dec 20, 2018 in forum: ME/CFS research
  6. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Thanks @Lucibee, @JohnTheJack, @Michiel Tack Just wondering whether anyone has approached Pariente to ask what his view of the causes of ME is...
    Post by: Binkie4, Dec 20, 2018 in forum: ME/CFS research
  7. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Is @Keithgeraghty on here? Pariante made a statement in 2012 that ME was caused by excessive rest in predisposed individuals. I think I have...
    Post by: Binkie4, Dec 20, 2018 in forum: ME/CFS research
  8. Binkie4
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Can I just clarify? Bath made the statement about Dr Jo Daniels yesterday, but was this appointment announced earlier by Nice? How many appointees...
    Post by: Binkie4, Dec 19, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  9. Binkie4
    Post

    Suddenly feel completely well

    Really glad to read of this interesting improvement @Wonko, but not the depression. Will look for updates on how things develop. Hope you get to...
    Post by: Binkie4, Dec 18, 2018 in forum: Immunological
  10. Binkie4
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Me too.
    Post by: Binkie4, Dec 17, 2018 in forum: ME/CFS research
  11. Binkie4
    Post

    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    Thanks @JohnTheJack . I am usually in safari but when I moved to chrome, I was offered a translation. It is a very, very sad story.
    Post by: Binkie4, Dec 11, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Binkie4
    Post

    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    Do not seem to have an English translation? ETA: am worse brain fogged than ever. What am I missing?
    Post by: Binkie4, Dec 11, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Binkie4
    Post

    NZ Herald running a series on EDS

    So sorry you experienced this @DigitalDrifter, and that you had a permanent worsening of your level.
    Post by: Binkie4, Dec 10, 2018 in forum: Other psychosomatic news and research
  14. Binkie4
    Post

    ME charity income versus other illness charities in the UK

    This irks me too @Sunshine3. It also makes me more determined to post about ME on my personal fb page, and I do. Not that I get many likes. But I...
    Post by: Binkie4, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  15. Binkie4
    Thread

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall....
    Thread by: Binkie4, Dec 6, 2018, 10 replies, in forum: ME/CFS research
  16. Binkie4
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    I found it a great shock to hear this said in the middle of (mostly) discussions about Brexit which like Nellie Pledge I have been watching...
    Post by: Binkie4, Dec 5, 2018 in forum: Other health news and research
  17. Binkie4
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    Live TV- BBC news channel, 107 here. ETA: about 12.35/40.
    Post by: Binkie4, Dec 5, 2018 in forum: Other health news and research
  18. Binkie4
    Post

    Wesselys Mental Health review could also replace Mental Capacity Act

    Merged thread Original title: Prof Sir Simon Wessely was thanked by MP today, and thanks were repeated by Teresa May! Presumably this will be...
    Post by: Binkie4, Dec 5, 2018 in forum: Other health news and research
  19. Binkie4
    Post

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    Can I add another blood condition which creates more likelihood of clots? https://en.m.wikipedia.org/wiki/Factor_V_Leiden I have it but I don’t...
    Post by: Binkie4, Dec 1, 2018 in forum: ME/CFS research
  20. Binkie4
    Post

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    MP Sir Edward Davey brought up this point in the June Westminster Hall Debate, not specifically focussed on Cochrane, more on Nice.
    Post by: Binkie4, Nov 30, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
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