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  1. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Thanks @Jonathan Edwards my brain isn’t up to much currently
    Post by: NelliePledge, Apr 27, 2024 in forum: Recruitment into current ME/CFS research studies
  2. NelliePledge
    Post

    The Agreed Care/Activity Plan

    they have no control on how it would be interpreted by others ticking things off on checklists for state benefits private insurance or ill health...
    Post by: NelliePledge, Apr 27, 2024 in forum: ME/CFS research
  3. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Sorry can I ask which document these quotes are from I think I missed something
    Post by: NelliePledge, Apr 27, 2024 in forum: Recruitment into current ME/CFS research studies
  4. NelliePledge
    Post

    Does treating high blood pressure do any good?

    I don’t have side effects from 2 lots of tablets I’ve been taking for 20 years
    Post by: NelliePledge, Apr 26, 2024 in forum: Other health news and research
  5. NelliePledge
    Post

    Practical Recommendations for Exercise Training in Patients with Long COVID with or without Post-exertional Malaise, 2024, Gloeckl, Scheibenbogen+

    Discretionary exercise for the sake of it is way off topic for people who have to pace activity of daily living.
    Post by: NelliePledge, Apr 26, 2024 in forum: Long Covid research
  6. NelliePledge
    Post

    The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland

    Wrong emphasis should have been focus on BACME and saying in view of all this the charities should be more sceptical of BACME. as others have...
    Post by: NelliePledge, Apr 25, 2024 in forum: General ME/CFS news
  7. NelliePledge
    Post

    Trial Report Explanation for symptoms and biographical repair in a clinic for persistent physical symptoms, 2024, Burton

    Ugh
    Post by: NelliePledge, Apr 23, 2024 in forum: Other psychosomatic news and research
  8. NelliePledge
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    Well washing - my brain blocks on well dressing. ( @Peter Trewhitt @Kitty ) :confused: https://www.historic-uk.com/CultureUK/Well-Dressing/
    Post by: NelliePledge, Apr 22, 2024 in forum: General Advocacy Discussions
  9. NelliePledge
    Post

    Resources for caregiving on the Very Severe end of Very Severe ME

    Hi all does anyone have suggestions about transcripts of the dialogues videos @Samuel asked for help here...
    Post by: NelliePledge, Apr 22, 2024 in forum: General clinical care
  10. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    I couldn’t see anything on the website @Samuel maybe others have ideas
    Post by: NelliePledge, Apr 22, 2024 in forum: Recruitment into current ME/CFS research studies
  11. NelliePledge
    Post

    What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?

    Recovery washing is probably what I’ve been searching for in my brain but couldn’t get it to surface It can include someone deeming a PWME or...
    Post by: NelliePledge, Apr 22, 2024 in forum: General Advocacy Discussions
  12. NelliePledge
    Post

    Protocol Online cognitive training for people with cognitive impairment following SARS-CoV-2 infection: A randomised controlled clinical trial, 2024, Corbett

    Comes from dementia research https://www.exeter.ac.uk/research/dementia-research/research/protect/
    Post by: NelliePledge, Apr 21, 2024 in forum: Long Covid research
  13. NelliePledge
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    The draft plan that set a timetable including updating the NHS website by March 2024 :whistle: not quite at Cochrane standard of procrastination...
    Post by: NelliePledge, Apr 21, 2024 in forum: ME/CFS research news
  14. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    I recommend watching the dialogues videos https://www.dialogues-mecfs.co.uk/films/severeme/
    Post by: NelliePledge, Apr 19, 2024 in forum: Recruitment into current ME/CFS research studies
  15. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Hi I assume you had to put forward a protocol for the project to get ethical approval that’s the sort of information I meant
    Post by: NelliePledge, Apr 19, 2024 in forum: Recruitment into current ME/CFS research studies
  16. NelliePledge
    Post

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Is there a protocol document
    Post by: NelliePledge, Apr 19, 2024 in forum: Recruitment into current ME/CFS research studies
  17. NelliePledge
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Yes excellent stuff @dave30th That SMC angle could be useful. I wonder if private eye would pick up on it. Obviously their medical person is an...
    Post by: NelliePledge, Apr 18, 2024 in forum: General ME/CFS news
  18. NelliePledge
    Post

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    I wonder if those attending will be able to ask questions?
    Post by: NelliePledge, Apr 17, 2024 in forum: Other psychosomatic news and research
  19. NelliePledge
    Post

    News from France

    Paris Match covering behind paywall the case of a 9 year old girl with ME/CFSwhi is subject to a legal case to be placed in a foster home...
    Post by: NelliePledge, Apr 17, 2024 in forum: Regional news
  20. NelliePledge
    Post

    Wellness Recovery Action Plan, as recommended by BACME, UK

    I can add that area has no service commissioned for me/cfs so the “wellness recover” plan is not based on any use with PWME
    Post by: NelliePledge, Apr 16, 2024 in forum: Psychosomatic theories and treatments discussions
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