Nobody is perfect I don’t agree with his take all the time but I agree CS has done a hell of a lot.
I’m sorry you feel powerless @Lou B Lou I certainly think there are issues with this project and MEA hasn’t handled it well. They need to do...
I just use the physio gel pack that I put in the freezer wrap it ina cotton scarf and put that on the back of my neck. Works really well for me...
Thank you to Long Covid Switzerland and Long Covid Kids Switzerland for becoming our latest signatories to the Open Letter to Cochrane. Thanks to...
I always find such articles stressful and worrying for the person engaging in the strenuous activity People are entitled to do what they choose...
Just even going by the name - inspiritol - makes it sound like snake oil
It’s Hannah Sharland
Ugh
And also included in the visible app
Not helping much as I don’t have specific link but this is ringing some bells that AFME or MEA had done some work on this a couple of years back...
Yes even the NHS and Department of Heath use ME/CFS officially.
Well the election is 4 July so this all remains to be seen
Now only 100 signatures from 11,000
Good to see them addressing this it is so important
Agreed @Andy at least do it as a collaboration the Drs need to understand there are UK organisations and researchers they can seek information and...
:thumbup: Great news you can message me :thumbup:
Made me spit out my tea :laugh:
That was my thought at the start of the project- yay let’s get rid of the Chalder questionnaire. But “hey it’s not as bad as Chalder” isn’t the...
I think it was mentioned a few months ago that the project is taking longer than anticipated.
Thanks @RaviHVJ this is why it’s good to discuss. Your take has reassured me.
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