I’m very sorry to hear about your cancer, Jo. I didn’t know. Given the heterogeneity and the number of people who are diagnosed with ME and then...
What I meant by a continuum is that the illness is defined as a threshold of a variable which is also present in the healthy population. In the...
When somoneone in the UK says they were diagnosed with ME for a long time before they were eventually rediagnosed with Lyme disease, you can...
Thanks for this post, Luther. I had thought about the idea but I hadn’t come accross the term before. Yes, this is an example of success or...
Yes, I’ve made this point before, and it’s worth repeating: if there are 250,000 ME/CFS patients in the UK and 15-30 million worldwide, if each...
I would also add that one of the things that I’ve had learn to endure as a patient is how to deal with the volume of advice I receive from very...
Would you say that syndrome is more accurate term based on our current level of knowledge? For the purposes of this MEpedia page, would you say...
Is “organic” a more useful term than “biological”? Whenever I hear the term biological in discussions about ME I think of Prof Crawley’s...
Unfortunately, you seem to have made a number of inferences which do not reflect my views. If that was my fault for expressing myself badly, I...
ME Research UK’s page on “What is ME?” is worth reading: http://www.meresearch.org.uk/what-is-me/
I’m not qualified to comment on the accuracy but it seems to be well written and reasonably easy for the lay reader to understand....
I realise that I am several years late in asking these questions but: 1. What is the advantage of having a separate MEpedia site rather that...
My thoughts exactly. That was partly why I invited him to join the forum. I can understand how somebody who is quite mildly affected might be...
Merged thread https://www.bbc.co.uk/news/health-44969741 Good article. If this is reported in the press, it presents a good opportunity to get...
It’s as clear as Trump’s Helsinki press conference to me. Wessely is a signatory to the white letter above, along with Lady Wessely and The RCP....
Astonishing that SW is a signatory to a letter which states: Perhaps patient experiences only count if they are suffering from an illness that...
The following message has now been posted below the blog by snow-leavis aka Peter Gordon who write the blog: Meanwhile I thought I would bring...
Don’t most illnesses limit energy to some extent? For me, it’s always been more about inability to recover. It would be much easier if it was just...
Thanks John. Can you add a link to Monaghan’s question. Out of interest, was this a FOI request or did you just write to the DHSC?
True in science but I’ve always thought that many literary writers strive for ambiguity. I used to loathe it but I’ve come to embrace it more over...
Separate names with a comma.
