From the FAQs: I don’t understand why people who have recovered aren’t being included. Understanding why some people seem to recover and others...
I am a participant with the ME Biobank and I am intending to volunteer to participate in the GWAS study. I am happy for my anonymised data to be...
I’m not particularly knowledgeable about all the different questionnaires, but I have filled in quite a few over the years. One thing I would like...
I fully understand these sentiments, and I share your anger at the SMC’s treatment of ME/CFS. But I still think it is an issue which needs to be...
I’ve said this before, but I think we may need national media coverage in order to get enough participants. @Andy, or anyone else, do you know if...
I’ve written to Dr Deborah Cohen who did the investigation for Newsnight to ask if she is aware of the PACE trial and related issues with the NICE...
Many thanks, @Simon M. Another excellent blog. Just one question. You write: “When salt is added to a sample of healthy control cells not much...
I think I understand your point, but “absolutely necessary” seems to be a rather woolly term that is likely to mean different things to different...
I have noticed that my urine often has a rotten egg smell (which I notice more because I use a bottle.) Prof De Meirleir once claimed to have...
Thanks for your message. Here is the thread with the finished version of Blowin’ in the Wind:...
This raises an interesting dilemma which many people face: How should you vote at a general election if your MP has been helpful to you personally...
Yes, many thanks to @Andy and @Chris Ponting, and thanks to you @Simon M for all your work and for getting Chris interested in ME research through...
Taken from a post by @Esther12 on another thread: [ATTACH]
It would be interesting to know how often panel members have been given anonymity in previous investigations. It would also be interesting to know...
[MEDIA] Thread: https://www.s4me.info/threads/denialism-what-drives-people-to-reject-the-truth-by-keith-kahn-harris.5247/
With any commercial test, I think the onus is on those are are charging for it to prove its reliability. Independent researchers have concluded...
I wonder if McLaren Howard could request 20 samples from the ME biobank – 10 ME patients and 10 healthy controls – to see if his test can...
Thanks for taking the time to respond, Michiel. I guess this is just a typo but it should be “Without blinding or objective outcome measures.” As...
I tested negative for Lyme on the NHS in 1992 when I was first unwell. As far as I’m aware I have never been tested again. I assume that is not...
Lyme disease was back on BBC R4’s Today Programme this morning. Much more balanced discussion this time. Starts at 1h 49m 54s:...
Separate names with a comma.
