His lecture left me feeling like I'd been on a rollercoaster, it was rushed but an otherwise well rehearsed summary & evolution of 20+ years work....
Just to expand on the good summary from @BurnA, Ron suggested 2x theories on the similarities: 1 - We might have undetected trypanosome type...
Depressingly I remember seeing a graphic showing that male pattern baldness already gets orders of magnitude more funding than ME/CFS....sigh.
Hi @Robert 1973, My NHS GP prescribed me sodium cromoglicate on the written advice of a MCAS/Masto specialising Dermatologist that I saw...
Good video. Message from this is those with POTS and suspicion of autoimmunity should strongly consider Sjogren's, because unless you're 60+ with...
I replied to this cross-post in the other forum but have copied my response here too for the benefit of others: Not sure if he was working from...
Yes, it can be performed elsewhere. I've heard reports of it being performed around the mouth, also seen some demonstrations of it on forearm. I...
I've been promised this after a muscle biopsy next month 'if necessary' - by that I'm assuming there needs to be some abnormalities in the muscle...
@Dechi, Do you know if you have had a Single Fibre EMG? This is the test specific for MG, different from a regular EMG. I understand from my...
Thanks @Sasha. Pretty good round-up though still lacking detail on rapid gastric emptying, which I find bizarre given that they acknowledge it as...
If you take this to a Myologist (muscle disease specialist) they should absolutely take note. In the right context Hyperlactatemia will raise...
Just to confuse matters further, lactate and the enzyme LDH exist in L & D isomers. The tests we're talking about only measure L-Lactate, which is...
Well that was quick, results were waiting in the letter box :laugh: Repeat lactate test was normal! Hmm. Still going ahead with muscle biopsy &...
Yup, registered 7.4 mmol/litre on a recent test, normal range < 2mmol. I had been active directly beforehand, brisk walk from train station to...
Hi Matt, This sound quite familiar to someone with POTS and a hyperadrenergic leaning. Before I started taking more care I experienced all of...
@BeautifulDay, I forgot to report back that I mentioned the elevated B12 status to my neurologist. She didn't comment on possible links to MitoD...
Ah ha, be careful, it is a money pit!! The heated sheet I have has a manual slider switch for temperature settings. My original plan would be to...
Great blog post @Jenny TipsforME :) I've been a big enthusiast of home automation for many years, its great to see it finally reaching the...
Interesting that a MitoD doctor has noted that. There were a few of us (myself included) back on the other forums that talked about finding B12...
Just got round to watching this. Interesting talk by Dr Systrom, with some points that I don't think represent generally accepted knowledge....
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